
As probably one of only a dozen deaf who have come upon, tripped over, or stumbled across this deaf week in the UK being mentioned, give me a break, time I think to wind it all up, I don't want awareness any more. The almost total lack of caring whether we hold such a week or not and disenchantment with the charities that use it to plug themsleves and tout for work while denying deaf any representation, just makes me sick basically. It's like the queen's birthday, it comes every year and is ignored, but still some people insist it has a point. At time of writing Wales had nothing going on in regards to 'Deaf awareness' this week, or any other week mostly.
A few years ago we had a split, there was the 'official' deaf week where charities blew their own medically-oriented vuvulzelas to drown out representations and the fact deaf were an endangered species, and the cultural deaf awareness week that was set up as some attempt to balance the awareness books, and insist deaf are not only alive but still around, by showing lots of people signing for a week, and giving the odd ABC of BSL to the disinterested masses, or to school kids, usually taught by hearing people. British deaf don't care about deaf awareness, we realised early on it was a farce.
Charities for the deaf (Usually the only deaf you see is in the charity title), run such weeks (Usually with no deaf around !), to show the latest and greatest in amplified telephones or 'support' systems, latest hearing aids whatever, and usually the only time you see lip-reading mentioned publicly, which are anathema to the deaf, and aimed at the HoH majority where the funding is these days, deaf don't 'Do' charity anyway, we rejected dependency and patronisation years ago, now it's for HI to understand. We realised years ago Deaf Awareness was a non-starter, was run by vested interests who didn't push empowerment but dependence, and that horse had been flogged to the bone and was pointless and irritating to deaf people. rather than row endlessly with these do-gooders, we left.
We were relieved when CI people were starting to be wheeled out, and pointed at, because it gave us a rest.
Support systems to most in the UK almost totally revolves around non-deaf these days, since we had the outright nerve to speak for ourselves, and wanted to run our own lives charity couldn't hack it, this is NOT the pitiful and helpless image that draws in funding. So they concentrate on vulnerable people losing hearing and who are scared witless they may end up having to sign or something, and live in hope they can become Borg or someone will cure the hell out them. There are a list of deaf charity losers we SHOULD be made aware of. These are the people who will be flogging our image to death this week (Or not)...
Number one is obviously the RNID an hearing oriented charity that had the dubious 'honour' of sacking a signing CEO because hard of hearing members and hearing executives didn't like the fact he was 'different', and rabbited on about deaf culture, and have in the last 7 years changed their remit 5 times to lessen any emphasis on the deaf and are planning yet another radical change of name, to celebrate their centenary by finally burying the 'deaf' title via 're-branding'. We expect 'NO SIGNING PLEASE' to be part of that re-brand. It had the dubious record of having only a single deaf person in an executive or management position, from 1100 staff. Keen to state hearing are deaf, and now want a global Plc image too. Which is great for us, it means the Yanks are going to get an A G Bell set up that has a distinct and perfectly English twang to it.
Number Two, the UKCOD, which is not actually a group at all as such but acts as an umbrella group to others, a sort of 'quango' with no people in it or something, supporting either those groups too small to make waves, and to assist and centralise those too poor to publicise and represent themselves. The UKCoD declared "We are so glad we have the RNID on board, or the UKCOD would have no function at all, because really only they count." The illogic of setting up the group seemed totally lost on them, and is mostly staffed by people hoping the RNID will hire them, or some hype will allow them reflected glory.
They then blew it, but setting up regular meetings the smaller groups could not afford to attend in London. For UKCoD, read RNID wannabees. Basically the RNID only participates to see what opposition they can erase, or filch ideas from anyway. It's what they do.
Number three, the BDA, an grass root based signing deaf group who were deserted by their own membership to go online and to the pubs, and who suffered major losses when more access enabled deaf people with them, with the means to go elsewhere. Had many decent and well-meaning people, but none with the means to counter corporate charities... and unable to counter the apathy of grass root deaf, the BDA is living hand to mouth. They simply caved against superior corporate professionalism and hype.
Number four, the NADP one of the few groups that actually portend to represent those with acquire deafness in the UK, but haven't launched a campaign in living memory, nobody knows who they are, and cannot encourage AD's to get involved. Will not stand up for acquired or deafened people's rights, in case hearing or 'Deaf' go for them, totally useless and has no leadership or direction. In short ... what ??!?!?
Number five, Hearing Concern, or whatever 'brand' it now calls itself, which is a strange set up to most, it appeals to bored middle-class housewives who were involved in weekly Tupperware things, and coffee mornings, had hearing aids, nobody could see, and didn't help them, and purred over amplified phones and flashing doorbells as if they were the only people who knew about them, most who ran the meetings worked for the manufacturers, or asked the RNID to do 'shows' for them... they didn't like deafness in their face, because the deaf talked too much, were noisy, and weren't grateful enough to them, it was a puzzle, as no deaf ever joined but....?
This is the 'Deaf Awareness' we will probably not really see, nor the fact there has been no campaign for equality and access since 2001 and that was by deaf people and none of the above supportive charities, who just go online and support whatever.... when they aren't faffing about on facebook or twitter. In most part they ONLY exist online. One day there will be an outage or something, and charity will cease to exist... Deaf awareness usually means never having anything to do with these people. Who curiously still insist they speak for every single one of the 9 million UK with a loss, this 'neglected minority', minority ? how can 9 million people be a minority ? Probably because the supportive charitable systems of alleged representation prefers to keep it that way. The real money is in portraying them as in dire need mostly.
Minorities get sympathy, cash, and clout, a majority wouldn't ! Deaf week ? who cares, I don't, deaf awareness ? what IS that ? in 20years all I've read is waffle, and self interest, and the almost total lack of involvement by the people it is for....