"When your ear's an useless organ, then your hearing can't be normal,
And yet that's just the start,
You can be learning signin' language, adopt another culture,
If you only played the part..."
It rolls on, like an interminable juggernaut, who is deaf ? who isn't, who has the least decibels who has the most, who lives in a permanently grey world who doesn't. Who is deaf and who has pretentions and real claims of it. At my other 'home' another set of debates who is really deaf who isn't has emerged, do you have to actually BE deaf to get your label ? so I chip in my ten pence worth to add to the confusion, by stating as someone deaf who really has NO hearing (Sorry not even a CI to boast about), so please may I claim to be a deaf person and not suffer the 3rd degree all the time about it ? And got a dozen insisting they are too, despite hearing with aids etc, it's the same old, will there never be an end to it ? OK you have issues too, but they are not the same ones.... so why use the same argument ?
If all else fails and you prove you really are 100% deaf, they switch to attacking the 'medical' view regardless if you accept it or not even as an simple explanation of the physical aspect you can't hear. If you counter that by challenging the fact they are using that view to gain allowances from the state or using decibel stats to prove their claims, then the switch is to personal attacks, who'd be deaf today ? I've met, with due respect, less confused with dementia.... My exasperation went along the lines of:
"So they STILL Insist the deaf can hear.... is it because the lesser 'deaf' are afraid they will lose out ? I can assure them as a deaf person myself I don't get anything either, and probably a whole lot less than those making more noise.... even awareness is a lottery. Too many labels, too many definitions, too much confusion, which leads to too many challenging every decibel you may or may not have,and that's just 'peers'. The RNID (a British defunct deaf charity that got rid of its deaf membership and CEO), draws a very clear line between who is deaf and who isn't, why not challenge them ? If you have 100,000 deaf people (Which is the alleged 'official' BDA/RNIDstatistic), then by definition (!) the rest aren't surely ? You can't have your cake and eat it.
You would think us in the UK with over 50 support groups would be ample examples of the total confusion.... and the fact they get nowhere, is down to that confusion. The issue of 'grey areas', is then no needs are defined, you have an 100,000 alternatives and another 8.999m with hearing loss as well. So no support gets organised. Of course these grey do areas exist, but 100% as is claimed ? We would never get access or support organised with that 'statistic'. It's not about support, which is non-extant anyway, but clarity. The fact is IF you have a total and profound deafness, there are no grey areas, you simply do not hear anything.. end off sorry...
Clarity might help those who are deaf /Deaf (tick your own boxes, I'm sure there are an 100K of them too), to find out who the hell you are supposed to be, and maybe stop lining Harlan Lane, Doug Alker, and Paddy Ladd's pockets with money.... as we follow some dubious yellow brick road to nowhere....and have to contend with deaf versus Deaf daily. Bring on the cure...."