Sunday, 27 November 2016

The forgotten.....

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Despite 11m suffering hearing loss in the United Kingdom, little or no real support is being offered to any of them, except a few in areas like cities who have a small charity of some kind to offer ad hoc support without any real continuity.

HoH and deafened appear to function without support,  but that is ignoring the real issues of them off-setting communication issues via the use of technologies.  technology is a great thing, but in hearing loss terms just appears to justify staying isolated and face to face has suffered by default as you get a text instead.  It depleted the role of deaf clubs.

It is debatable you can address a serious disablement that way. because of over - emphasis on lip-reading, and then HoH and others finding it extremely difficult to master, it is a huge hit or miss approach, not least because access to a class, the formats provided, the reluctance to adopt inclusive communication approaches, or to assess pupils, by age, or by communication needs is a major issue no-one is really addressing. 

There are some sort of perverse areas, where pop stars admit better dead than deaf, loud and proud etc,  to play down the seriousness of hearing loss, even when they have to admit they cannot hear properly either.  Even signing is seen as  'fun', disregarding WHY deaf do that.

ATR suggested day one a complete clinical assessment to take place when a person has an identified hearing loss, not when it is too late to address it. Counseling ATR suggested, is essential given the trauma of severe loss. Loss separates you from other people. It's a 'bereavement' as you end up cut off from people you have known for years, even losing family members/relationships, and your job as well.... 

The sole answer seems to be put a hearing aid in and forget about it, or, maybe put in for a CI which is a lottery of provision, area on area, with cost as a major factor as well as a priority for the younger element.  

That, or learn BSL and go join their communities instead, despite no-one is asking, do the Cultural deaf community want to do this ? Do they want to be a 'dumping ground' for a system that fails to support HoH as well as them ?   To support an area that doesn't really want to sign to them ? and probably views deafness as a  serious disablement as well, and to lobby for its eradication, quite contrary to the cultural view.

There is no account taken of what people need, want, or actually feel. Having said that there are no trained counsellors are there ?   There is no extant system in the world that we know of dedicated specifically to counsel the HoH or deafened as to the way ahead. Who would train them ? and How would the training formats be organised? as a stand alone support system ? or one that includes, or even excludes the 'Deaf' too ?

Some NHS areas have 'hearing support' clinics, but no definitive professionals and appear to work on the medical support side not the lifestyle or choices side at all.  E.G. do I join a deaf club or not etc... Recent blogs suggest HoH do not want to join deaf clubs, communications and lifestyle areas are difficult to transcend, they are already having communication unaddressed issues, or simply they don't see themselves as a part of that set up after years of hearing.

Trauma demands experienced pro support, not a day class on guesswork. ATR again suggested 15 years ago a 'pool' of support areas should be erected region by region, to ensure no matter what level of loss you had there was an area you can freely approach and ascertain the best way to proceed with your life.

Charities said "That is what WE do !"  But factually charity has not the support of grass roots, are polarised in supportive areas, or they are desperate to gain funding themselves, simply to carry on existing.

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