Saturday, 8 September 2018

Are some Deaf real frauds?

Image result for fraud?Having read this judgement via a PIP appeal from a deaf claimant it seems some are, and being caught at it.  The relevant part of the decision appears to be here:

"Her representative wrote “As has been explained [the claimant] is pre-lingually deaf and can only communicate via BSL. Because of this, she should have been awarded points for reading, and as budgeting requires the ability to read, points for budgeting. In addition, she should have been awarded points for planning and following a journey”. Of course, and at the risk of stating the obvious, the initials BSL stand for British Sign Language. Since the Secretary of State did not alter the AWARD upon mandatory reconsideration the claimant appealed to the First-tier Tribunal (“the tribunal”).

There was an oral hearing at which (unusually) both parties were

The claimant gave evidence with the assistance of a BSL speaking interpreter but it is apparent from the record of proceedings and the tribunal’s statement of reasons for decision (statement of reasons), that she would occasionally choose to bypass the interpreter and communicate with the tribunal by writing down on paper and in English, what she wanted to say

This raises a valid point about how 'some' deaf activism is using culture and sign as a means to obtain higher 'disability' allowances, however, as we read, claimants 'Deaf' who can sign but ALSO have an added ability to use English, or was abusing the welfare system by claiming to 'prefer' not to, or even it is a right to refuse to use it on cultural grounds.  

In essence, IF you are seen to be able to use alternatives that are effective, then you are expected to use those alternatives and not make yourself  'deliberately isolated, disabled, reliant, and unemployable' by choosing a poor alternative.  The reason had to be challenged because it could empower ALL deaf from day one to refuse anything but sign use, even a flat refusal to learn basic English when they are able.  The only puzzle is why this deaf claimant wasn't refused the claim outright for misleading the tribunal.

NOTE:  ATR has been consistently refused text support because of a valid speaking voice by the system, why is culture an exception simply because they sign, when the deafness is the same?

Friday, 7 September 2018

PROVE your deaf child needs to sign.

Wales has NO deaf schools, we manage OK...

A seven-year-old deaf boy who has been out of education for eight months, can’t get the specialist schooling he needs because Cheshire East hasn’t completed vital paperwork, his parents claim. 

Jenson Lindop Lamens, of Sandbach, suffered brain damage and hearing loss when he contracted meningitis at the age of 16 months. His parents, Richard and Jenny, took him out of school last December because he wasn’t receiving the specialist signing and bilingual help he needs and he was becoming increasingly upset at not being able to communicate. 

The couple say Cheshire East doesn’t have a school which provides for children who need sign language and when they found Jenson a school in Stockport – just four miles from his old school – the new school was unable to take him until there is evidence in his plan that he needs British Sign Language support. Cheshire East, as the local education authority, is legally required to keep an up-to-date ‘manual’ of the education and health care requirements for every special needs child. 

Jenson’s parents say this hasn’t been updated since December 2015 so it doesn’t include a later review which stated he needs a signing resource – and this is why another school can’t take him. Jenny said: “The paperwork from the meeting last September, where it was agreed that Jenson would be entitled to full-time one-to-one signing support, seems to have mysteriously gone missing so that information is not going to be put into his plan because, according to Cheshire East, it doesn’t exist. 

“But it does exist... we’ve got emails from his old school to say that they were trying to put it in place because of the meeting, but Cheshire East are just refusing to put it in his EHCP because apparently, they don’t have any evidence he needs to sign.” 

She added: “The school in Stockport can’t accept him until his paperwork says this child needs this. If I consult with another school they’re going to say exactly the same to me and it’s not because that school is not appropriate for Jenson, it’s because his paperwork doesn’t reflect the child that he is.” Jenny said she was also amazed that, when she took Jenson out of school in December, no-one at the council checked on his welfare. “We took him out of school without one single email or phone call from Cheshire East to say ‘why’s your son out of education?’ 

I reported myself to child welfare in March to say, ‘can you please come and prosecute me or do something because my child’s out of education and Cheshire East won’t do anything’,” she said. “I emailed to say ‘I’ve taken him out of school, you don’t know where he is, you don’t know what he’s doing, this is a complete welfare issue’ and nobody’s contacting me. 

Living with an invisible disability

My social circle shrunk after I became Deaf. People did not know how to deal with it or unfortunately can't be bothered ...
My social circle shrunk after I became Deaf. People did not know how to deal with it or unfortunately can't be bothered ... My social circle shrunk after I became Deaf. People did not know how to deal with it or unfortunately can't be bothered dealing with you. Making friends as an adult is hard. 

Making friends when you have a disability is even harder. There is a sense of fear and anxiety when striking up a conversation that the other person will get uncomfortable if they see you look different or they struggle to communicate with you and so they get frustrated and give up. 

I was born with hearing and due to a neurological medical condition and subsequent surgery, I became deaf in my left ear. The battle with being lonely in a new town I was told that as I got into my late 20s, early 30s, it was almost a given that I would become profoundly deaf. However, I was 16, naive and figured that was a long time away so continued life as normal. human touch.

I was an extrovert, had a large group of friends and enjoyed socialising. My friends used to joke that I'd walk into a room and by the end of the event I'd know everyone's life story and be best friends with the dog. They were joking of course. I would have been friends with the dog first. 

Roll forward nine years to the end of 2009, I had recently gotten married and my husband and I were in the big city and enjoying the big city life. Unfortunately, my surgeon's warning came true, over a space of three weeks I lost my remaining hearing and was now Profoundly Deaf. The following 18 months were a blur of specialist appointments, test, scans, surgery and heartbreak to get my hearing back. But alas, it wasn't too be. 

I had to learn how to live being Deaf in a hearing world, whereas as little as 12 months before, I was a part of that hearing world with no problems. It's a huge mind shift to get to grips with and one my social circle struggled with. I still struggle with loneliness and depression after losing my hearing, but I have a group of friends I can call on. I still struggle with loneliness and depression after losing my hearing, but I have a group of friends I can call on. I looked the same, sounded the same, worked in the same job, yet my communication needs were different now. This lead to the unintentional shrinking of my social group. 

People naturally gravitate away due to not knowing how to deal with it or unfortunately, can't be bothered dealing with you. The saying that; 'When things get hard, you find out who your true friends are' certainly came true. I fought so hard against being Deaf, I didn't want to be. It was a whole new world for me and unfortunately, there was very little support I received. 

Not medically, of course, I had an abundance of that, but mentally. I had no idea where I could go to access help and support for myself and husband (nearly 10 years on now, I know what's available to me but at the time there was no information given to me). This led to me shying away from social events. 

It was too hard to communicate in a large group within a noisy setting. This led to depression and loneliness as I didn't want to be a bother to anyone. About five months after I became Deaf, it became apparent that my husband and I needed a proper way to communicate.


Thursday, 6 September 2018

And the band played on...

Image result for head on a drum deaf vibrationSadly without me.  
Crypto's latest blog displays I am sure, there are means for deaf people to follow music, an issue I never believed in being an 'ex' hearing person/musician myself with knowledge of how it is supposed to sound.  

I don't want to put a downer on those deaf who still manage it, even if 'access' to music is relative in most part as to how I would describe it, and they aren't getting more than 16% or even less of it..  What I tend to see is deaf accessing the more physical instruments that produce easily identifiable vibrations e.g. timpani, drums, Bass etc, instruments that their body react to, but ask them to discriminate between Elvis or Pavarotti, via singing, then the issues of access begin to show themselves more clearly.  

Image result for head on a drum deaf vibrationThey would know the difference in size and age, but ask how many deaf follow e.g. opera and the cracks tend to show themselves because the voice becomes the primary 'instrument' (And often in an unfamiliar language).  Classical music also has issues, despite Evelyn Glennie of the UK being a 'deaf' virtuoso of percussion in the UK, she is an exception to the rule and not really from the 'Deaf' areas and oral reliant.  She was panned for years as a 'pretend hearie' because she managed international fame and success without any cultural inclusion or sign use and didn't promote it.

Of course, the sensorineural loss can prevent accessing the frequencies many instruments present, just as it does in identifying different voices.  Those frequencies are generated by the vibrations deaf need to 'follow'.  They define what the 'Deaf' hear in effect or what hearing do.  Dogs and other animals/birds/mammals can access frequencies well beyond any hearing or deaf person.

Of course, the vague descriptions these days as to what deafness IS hasn't helped, if like me bone conduction is poor and hearing at zero identification, then I cannot be a 'listener' using any type of assisting technology or useful hearing.   Then, I have to have hearing, there isn't an alternative.

I cannot enjoy music any more, it was too traumatic for me to lose all access to it.  I was 'spoiled' by the fact I had enough hearing earlier on to discriminate instruments from each other and appreciate different styles and singing voices.  I could mentally listen to most music up to about 1970 nothing exists after that, because that is when the hearing vanished entirely.  I was just not able to settle for the vibrational approach at all, I would be stressing trying to fill in all the gaps I know my deafness won't allow me to access.  

In essence, if I couldn't have it all I wanted none.  To that end, my radio went, my guitars, I don't use sound on my TV or computer, and my music collection went too, everything connected with generating sound was binned.  The stuff became a useless ornamentation, and worse a constant reminder of what I will never have any more. 

I did attend an 'inclusive' concert for the deaf, it was not possible even with direct access to the vibration of the instruments and the players, the interactivity was on a screen with coloured lights on, that wasn't very well synchronised with what was being played, and captions with signing accompaniment, which offered no 'In' as I could see.  The signing was pointless except to tell the deaf there what was being played.  Attempts by the terp to describe what instrument was playing became farcical as the terp resorted to face pulling for some reason and likened some instruments to cats wailing!  Would a deaf person know a cat wailed like a violin?!

Text access was 'Violin plays', 'cello starts now..' 'Spirited drumming starts..' etc  I saw no point in that given I could still hear nothing at all.  The Deaf audience seems to enjoy it by comparison, apart from deaf children treating the concert hall as a playground and insisting on pulling at the instruments.  I never went to a deaf organised 'music appreciation' event afterwards.  I emerged more depressed than anything the access was zero in my respect.

Wednesday, 5 September 2018

Deaf Girl: Why won't they play with me?

10-year-old Amber (pictured) has been in and out of hospitals her entire life, but mother Belinda is worried that this is what could break her daughter's spirit
Heartbreaking diary entries of a partially deaf girl who claims bullies hung her from a tree with a skipping rope have been revealed by her mother. 

Amber Yoon, 10, was allegedly strung up by her neck in the playground of Queen of Apostles Catholic School in Perth late last month. On Tuesday, taking a stand against the bullies, Amber's mother, Belinda, shared the diary entries that alerted her to her daughter's tormentors months ago.

10-year-old Amber has been in and out of hospitals her entire life, but mother Belinda is worried that this is what could break her daughter's spirit.  'I can't get off my mind why won't my 'friends' won't (sic) play with me,' the young girl wrote in a new diary after ripping out her previous entries. 'And haven't been treating me not (sic) very nice. 'Pray for me please.' 

The heartbreaking diary pages of a bullied 10-year-old girl have been revealed by her mother
On top of heart-wrenching messages, Amber would draw herself and label herself as the 'weird girl'. She wrote that other children would not sit with her, claiming they would ignore her if she tried to interact with them in the playground.  Her nine-year-old brother, Hunter, who also attended the school, told his mother he had repeatedly seen Amber sit alone. 

EE to provide more support for HoH phone users..

ee store
EE first network to provide plans for those with hearing loss ee store By Choose team 4 September 2018 EE and Action on Hearing Loss have joined forces to provide plans for those in the UK suffering from hearing difficulty. 

In an age where phone calls, text messages and voice memos have become part of the everyday, those with hearing loss can feel left behind and isolated, but EE has made efforts to ensure everyone can enjoy the benefits of having a mobile device. Picking up the phone and hearing Aunt Sarah complaining about the neighbour's dog can be taken for granted, but for those with hearing loss, this can be a luxury.

According to, one in 6 people in the UK suffer from hearing loss, the disability is more prevalent in those over the age of 70 (three quarters of whom have a significant hearing loss) and among newborns, 1 in every 1000 is born deaf. The EE plan The EE plans, available through the Action on Hearing Loss website are specifically tailored to suit the needs of those hard of hearing, with increased data allowance and fewer minutes. 

The £10 data pack provides customers with 2GB of data and unlimited texts every 30 days, in comparison to the standard 18-months Sim Only plan, available on the EE website, which starts at £20 a month for unlimited minutes and texts. These new data packages concentrate on the way those hard of hearing prefer to communicate: via text, email and messaging 

Still not 'Deaf' enough?

Juliet Corwin.
Who cares what these 'purists' think?   I'm just surprised anyone puts up with these anti-CI, anti-hearing aids anti anything that helps view.  We need to isolate those people.  They are not entitled to criticise or oppose choices for others. Go away.

"I'm proud to be among those who live with deafness. Yet I often feel rejected by some of these same people. Many who embrace Deaf culture -- that's deaf with a capital D -- tend to think of deafness as the defining factor of who they are, and consider those who are integrated into the hearing world through technology -- such as hearing aids or cochlear implants -- as “not Deaf enough” to be a part of their community. 

Many of them have never heard anything, and have never communicated through speech. That’s different from me, but in the end, none of us can hear without assistance. I believe that their need to exclude comes from not being able to fully understand others’ deaf experience. Still, it’s destructive. Many Deaf people -- and hearing people -- think of cochlear implants as a "solution" to deafness. It isn’t; the implants simply offer me a different deaf lifestyle."

Tuesday, 4 September 2018

Hard Of Hearing..

If you are suffering ASL/BSL/ISL and 'L'! overload already here is an antidote so Hard Of Hearing can feel involved. Fun, fun, fun!  (and no lectures...).

Accesible Videos.

Who is the video aimed at? 'Mainstream'? They only have to look at Deaf video output to see they, DON 'T do this.  Should the deaf community be practising what they preach to others?  Just more 'awareness' to fall on Deaf ears....

Do as we ask, but not as we do?

Ditching the technology...

Image result for everyone on phones
The massive access we have via phones could be seen as a blessing and a curse. Many pundits suggest it is making people anti-social regardless of hearing loss degree etc.   UK schools are debating a total ban on children taking them to school.  What is shocking is they were allowed to.

I am wary texting is avoiding direct communication to actual people. It's OK in the right place, not everywhere. It looks like we are all communicating the same as anyone with decent hearing, but we aren't actually are we? Yes its a norm now, turning back the clock is pointless, but those of us with hearing loss are moving like hearing societies, further away from direct contact at times, we can fool ourselves as we sit alone and text all day to lots of people we are still in it, or go online where lots of deafies and HoH and communicate that way, but are we being social?   

I could be texting a brick wall with the same effect, nobody is who they really are anyway, phones are used to 'gild the lily' (i.e. mask something with a veneer to suggest what it isn't), to suggest people aren't who they really are, or who they would like to be, it's surreal!  It would appear females are doing this more than the male and using apps to make themselves look totally different in appearance to what their features are,  'face to face' is then avoided.  Males are following suit, social contact becomes an issue because they can be rumbled.

Being 'social' has been redefined as to not include people in the same room.  As someone brought up without a phone, without 888 subtitling, without sign language, without captions etc, and forced literally to find own ways of effectively communicating to other people, the whole concept doesn't look empowering in real terms to me, and how you hone lip-reading skills via text I will never know. 

We know those who use sign languages have a real social life and HoH, by comparison, don't really, and how they fear text is a direct threat to their communications, hence all these vlogs that they refuse to add text with and why tuition of sign omits text, face to face is essential for their communications.   I often feel as an individual technology hasn't enhanced my direct social skills at all, and going out to meet people who stop you in mid-flow to yak on these things is extremely off-putting and rude, and if they do it all the time, I'm out, literally and physically. 

As a rule, when I leave my home to socialise or shop or meet relatives/friends etc, my phone does not go with me, this ensures I have to make the effort. Even the possibility a phone can translate effective speech to me, I take on a 50-50 basis because again I would be relying not on my own abilities, but an electronic wafer or something. There is no way to access other people if they are tapping away at a phone or ignoring you to  talk into it 24/7.   It is the same as people turning their back on you to speak.

At least with a hearing aid you can still hone skills and make effort, taking effort away seems self-defeating.  Is technology our friend or foe I am ditching my new one and going back to an ancient NOKIA, it's a start!

Monday, 3 September 2018

NDCS charity to get Competition?

Inspirational new charity launched to help the 45,000 deaf children in the UK
Will be interesting to see how they will deal with resisting cultural pressure on deaf education. Are they going to oppose NDCS directions?  They appear to have split with them.

An inspirational new charity dedicated to deaf children is set to open this month with a party to celebrate its launch. Berkshire Deaf Children’s Society will open on September 16, following the merging of two charities; Reading Deaf Children’s Society and South East Berkshire Children’s Society. 

The new society aims to support deaf children and their families by providing opportunities for deaf children to meet others, make friends, develop skills and build confidence. Samantha Barnard, chair of Berkshire Deaf Children’s Society said: “By combining our efforts we will be able to offer more opportunities for deaf children and their families to meet and have fun. 

“Membership of BDCS is free and we already have lots of fun events planned including a Christmas Party and pantomime trips.” There are over 45,000 deaf children living in the UK and almost twice as many deaf children failed to achieve five GCSEs grade A* to C than non-deaf children. BDCS hopes to improve these numbers as well as support parents and families of children who suffer from deafness. 

Getting a Job In Wales.

Action on Hearing Loss - Employment Film from Woven Films on Vimeo.

It needs deaf to show confidence and not start with you have to do this for me demands all the time.  I've done the same and had my leg pulled and tricks played on me by workmates, once you accept it as par for the course communication is pretty straightforward, we need to silence those activists/naysayers trying to create barriers and disaffected deaf all the time, they can't and don't pay your wages.

I think he did well here because building sites are dangerous places if you cannot hear a warning. He appears to have an ability to manage without translators too which is a huge plus, as employers won't take such deaf on, their biggest concern is communication effectiveness.  

Employers aren't anti-deaf, they don't see deaf communication as effective.  Just because deaf don't see this issue, hardly helps, they are communicating sign to sign, deaf to deaf, not deaf to hearing.  I did notice when he was reading he wasn't always paying attention to those speaking to him, he needs to show that he is aware of the others around him its important on a building site.

He would be allocated work where there is the least danger of issue, but that's OK. Deaf can concentrate to the exclusion of all else at times, but its not always a plus.  I wasn't allowed a phone at work 'though, employers said 'you aren't here to play with those!'  (I wonder if that is why so many UK teenagers are having difficulty doing a daily job, maybe it interferes with their online socials.

HoH Month?

I suspect the opening titles suggest it is ASL day, not HoH day/month.  We despair deaf or HoH support areas know who they are talking about.  In publicising events for those with hearing loss, perhaps best they use that reference since ASL Day suggests NOT HoH at all, we would assume automatically it had nothing to do with HoH.  The signing image is for signers, and using it in conjunction with a debateable dual remit only misleads people.  We now await coverage which will be ALL ASL signed!

The UK doesn't have these days, so at least they are blatant about it being a celebration of deaf sign.  HoH events here are about ear wax, hearing aid issues, and sign alternatives not much else.

The translated Deaf Self

Maybe should have the sub-heading 'my life as a dependent on others?' What constitutes a 'Deaf Life'? time spent as deaf? time spent as a signing person?  How many deaf schools/clubs they went to?

E.G. I know many deafened people deaf for over 40 odd years, older than some in this video, who don't use translators, simply because there aren't any for non-signers.  I rather suspect these type of blogs are more about rejoicing in being a born deaf signer with a perceived culture than anything else, who don't have other options or even some who don't want any other options.

It doesn't cover or even attempts to, the issues/needs of most deaf with an inability to sign, or simply not wanting sign language.  To us as deafened people making a life-long dependence part of what you are, seem pretty sad to me.  Do they not want independence at all?  Is reliance just propping up culture imaging?  The Vid lacks access for others too, I don't see what the point really is other than a wider communication ability is not one part of it.

Sunday, 2 September 2018

What HoH need to do...

A lot hinges on the Hoh person, they need to make it clear which mode is best for you to follow, be it pencil/paper, clear lip-speaking, good lighting, toning down background noise, using a mobile phone etc.... 

Image may contain: textFactually 76% of those with hearing loss are in complete denial or even ignorance as to what their ability to follow IS. 2/3rds don't even wear a hearing aid they need.  3m in the UK won't. While it is right to point out aspects we need to follow, most of us aren't doing it. 'What hearing have to do..' is a repetitive plea but very little on 'What HoH need to do..' as well.   Communication is a two-way street.

Most with hearing loss issues don't know what really works for them, they maybe haven't done the 'acid' test of exposing themselves daily to the challenges, this isn't unusual, retiring from the 'fray' is a stress reliever too, the trick is to ensure you don't do too much of it..  

It may not be a single mode approach you need, and what we think we hear and understand and what we actually do, tends to be debatable.  We are hardly in the right position to know.  Even dependent sign language users can falter with their support in place.  Many of us 'pro- listeners', make a decision as to how much detail we want, research background to prevent meanderings by others so we can concentrate on the core information we need, make notes of primary info details you require, and stick to them, rambling asides aren't welcome and a detraction from the main point.  Keep social chit-chat for AFTERWARDs.  Then you don't get sucked into lapses where you come off worst or fail to get the info you asked for.

Once you accept there are people who won't oblige you, and others you cannot follow at all, but realise most will if you make a simple request to help, then it gets much easier, I've done 47 yrs this way and not had to rely on others. Playing the victim is not me anyway... The key, was being brutally honest with yourself and not waiting for others to point it out, and then assuming you are some kind of village idiot instead. I couldn't follow, what was the point nodding assent that I did?   Hearing are told by me, 'If I nod too much that means I am NOT following you as well as you might assume.. please ensure I have via the alternatives I have asked for. We need to drop the defensive/aggressive approaches too.  'Laying down the deaf/HoH law' to all and sundry can just annoy people.  A simple request is all you need. I find co-operation much more effective and a less confrontational route that way.

First get assessed as to what DOES work with you, then go about addressing it.  Your families are probably best placed to tell you how it really is but don't then rely on them for cover, that's cheating.  Don't assume you know yourself if it did work, would you be in this position anyway, short of admitting you didn't?  No side-stepping with technology, or using others, the proof of accurate understanding is via one on one, and face to face, not by remote.

Try not to get depressed about it and face up to it instead.  Contrary to popular belief others cannot do it for you.  If you allow them, then you aren't dealing with it yourself, simples...