Friday, 5 October 2018

What hearing aids can/can't do.

Miss the word, miss the point.

Oldest living CI implantee?



Mrs Dulcie Selleck was all smiles despite the unusual location of her birthday. Dulcie celebrated her 100th birthday at the Royal Victorian Eye and Ear Hospital with the University of Melbourne’ s Department of Otolaryngology and Cochlear Ltd. 

She is believed to be the oldest person in Australia living with a Cochlear implant. To mark the occasion her family was joined by her surgeon Professor Stephen O'Leary, members of the executive team at the hospital, the University of Melbourne’ s Department of Otolaryngology and Cochlear Ltd to wish Mrs Selleck a happy 100. Mrs Selleck is a perfect reminder that age is not a barrier to having a Cochlear implant to treat hearing loss. 

She had the implant surgery at 98 years of age and it has improved her ability to connect with those around her. “I am sorry I put off having this done so many years ago”, she said. “I was pleasantly surprised that the operation was not as bad as I thought it would be. I am much happier now. I enjoy going out with my group of ladies and joining fun and frivolities.” 

Cochlear implants improve the quality of life and social interaction for older people suffering from hearing loss. Professor O’Leary commented: “Isolation and depression are common consequences of untreated hearing loss. Cochlear implants really help patients interact with their family and enjoy the simplest moments in life like sharing stories with their children and grandchildren.” 

Wednesday, 3 October 2018

Coors deaf community.

Differences in deaf-hearing schools.



What a politically correct mess! #pleasenothere

Health support for Deaf and HoH ignored.


Letter: Deafness at bottom of NHS priorities list, Picture: PA WIRE
The result of Deaf insisting they aren't disabled.  Then it doesn't qualify them for help to manage it, be careful what you wish for?

Almost every week we hear the NHS has increased spending for smokers, drinkers and obesity clinics (some of these symptoms can, with a dose of will-power, be dealt with by the individual), while cutting services for others. 

Deafness is the disability that is at the bottom of the queue as far as priorities go. I believe you don’t qualify for a Blue Badge for your vehicle, but people who don’t drive obtain one just for sitting in a vehicle while someone else drives them around. 

Some disabilities are entitled to a reduced fee TV licence. Losing one’s hearing IS a disability. It’s about time deafness had more consideration in the NHS. 

Please Applaud quietly!

Image result for jazz handsOMG, and these people are the future... [Snow-flake alert]. We are just awaiting indignant deafies objecting to students taking the piss...

The student union at Manchester University has banned clapping and replaced it with "jazz hands". The decision has been met with widespread derision on social media. Jazz hands — waving both hands — is the British Sign Language (BSL) equivalent of clapping and has been introduced to ensure deaf and autistic people do not people left out. But the decision has been greeted many on social media as a sign that political correctness has finally gone too far.

News of the measure was met with criticism in some quarters, with broadcasters Piers Morgan and Jeremy Vine among those weighing in. Broadcaster Piers Morgan said Britain was "losing its mind" and journalist Jeremy Vine tweeted a picture of British soldiers in the trenches during the First World War, which ended 100 years ago next month.

It's the 'Snowflake Generation' Again. Many others on social media suggested Britain was becoming a nation of mollycoddled "snowflakes". But one mother, speaking on BBC Radio Five Live on Tuesday, October 2, said clapping could be very intimidating to autistic people.

Clapping is banned at the University of Manchester Student Union events "to avoid triggering anxiety and improve accessibility." Students will instead use silent "jazz hands". Glad some brave young souls decided to ignore the difficulties caused by sudden noises 100 years ago. Sara Khan, a student union officer at Manchester University, said traditional clapping was problematical for students with autism, sensory issues or deafness.

Tuesday, 2 October 2018

Opinion, Opinion!



But are we any the wiser for these explanations..... fact, is what YOU want to believe.

The Hearing Journey.

Sharing REAL Awareness.


Image result for shared awareness
I’d appreciate what awareness the deaf community would be sharing as it is not about inclusion or equality for us all but a singular sign and cultural approach and aim.

To understand shared awareness you need to include, to gain perspectives, and this does not seem an 'in-house' issue as regards to hearing loss, but an 'everyone for themselves' situation.  The daily abusage of the Deaf & Hard of Hearing remit is the norm now.

E.G. If the signers sat down with the deafened, hard of hearing, deaf-blind, multi-disabled deaf, the hearing, and the mainstream disability community, they would be more aware themselves, and a unified approach pretty much guaranteed to get what we want..  If you get 100 signers in one room then what sort of loss awareness are you going to get? Or even a 100 Hard of Hearing?  Just a one-sided view of things and Deaf do this,  deaf do that and nobody else exists.  Equality in a vacuum and legalised apartheid by loss degree, db, language and lifestyle, we all become an Island..

I don't think hearing loss areas, would understand real awareness if it bit their backside frankly.


Technical Bit: HERE 

Monday, 1 October 2018

The Secret signs of Abuse...


Pope Francis leading the Wednesday general audience in Saint Peter's square at the Vatican on September 26
Deaf and mute children were taught 'special secret signs' for sex acts by paedophile priests in Verona who would then force them to carry them out, says alleged former victim 'Giuseppe' was abused as a child by priests at the Antonio Provolo Institute He described how he was unable to communicate what was happening to others, even via sign-language, because the signs were invented by priests.

A deaf and mute victim of the historic sex abuse inside the Catholic church has revealed how he and his friends were taught secret signs for oral sex and sodomy at a learning institute inItaly. The victim, identified only as 'Giuseppe', told The Daily Beast how the priests and monks at the Antonio Provolo Institute in Verona had started teaching him a string of sickening signs for things such as masturbation, fellatio, penis, and anus, when he was just 11 years old. 

The signs were designed to be incomprehensible to others, even those who could understand sign language, making it impossible for the children to accurately explain what was happening to them to their parents or the authorities. A deaf and mute victim of sexual abuse inside a Catholic learning facility has spoken about the abuse he experienced there. The secret signs which he came to understand as commands for sexual acts could not be translated, rendering them incomprehensible to outsiders 

The secret signs which he came to understand as commands for sexual acts could not be translated, rendering them incomprehensible to outsiders. Consequently, it took years before anyone could understand what he was trying to say, and even longer before he was actually believed. Giuseppe is one of 67 young boys named in court documents and detailing the alleged abuse at the Provolo Institute carried out by more than two dozen priests and brothers. 

Verona prosecutors are planning to bring the case to trial in the coming months, having spent almost a decade investigating the allegations.

Helping the blind see...

Hearing: A celebration


Bathurst notes that currently there are only a few hearing conditions that are operable, recognizing that she was fortunate.
In a week dominated by lauding silence, a deafened view. A personal story of losing hearing for 12 years — and then regaining it. 

Sound had come back into me with the force of revelation and I had no idea what to do with myself. I could hear! I could hear!!!! I’d been hearing for 28 years and deaf for 12, and since I’d gone back to being hearing again, everything was bigger than I had the capacity to express. I wanted everything. 

I wanted to try everything, listen to everything. I wanted to go up to strangers in the street and ask them if they had any idea of the miracles taking place inside their heads. I wanted to tell them that this hearing thing — this basic feature, fitted totally as standard in every working model — turned out, upon examination, to be a piece of kit which made the works of Shakespeare seem slack by comparison. I wanted to scroll dotingly through photos on mobiles, pull up proud scrapbooks of cochleas and temporal lobes, exchange reminiscences about auditory cortexes. I wanted to declare myself sound. 

I hoped these people knew how many miracles they had inside their heads, and just how much of the time they squandered those miracles on automated lift announcements and three-for-two offers on fabric conditioner. I sat in caf├ęs, blissed by the opportunity to eavesdrop on people bitching about their colleagues. I struck up conversations with strangers on trains or found excuses to offer directions to tourists. 

I rang up friends in Orkney or Greenock just because I wanted to hear the way they said “modern” or “cosmetic” and savoured the tastes of each professional dialect — the wipe-clean tones of nursing staff or get-in-quick diction of cold-callers. Several times I lost the thread of discussions because I was too busy listening to the sensation of listening rather than the sense. I talked to people on the tube. I took my new hearing to films, parties and bicycle races, 

I experimented with power tools and hung out around chainsaws. I stood below telegraph lines to hear the scribble of swallows or climbed hills to find the lilt of a curlew. I greeted the three-note preamble to a train announcement like an old friend and tripped out on the sheer poetry in “Cashier number THREE, please!” 

I watched TV not because I was interested in what was on, but because I loved the indulgence of sitting there just moving the volume button up and down. I wasn’t groping for a single word any longer or making approximate swipes at possible topics. I could hear a whole sentence! Every letter of every word! I could make out all of what people were saying from beginning to end! I was astounded by the thrill of exactitude. I could hear accent, dialect, nuance, mood. I could understand, and once I understood, I could connect. I had come home. 

Sunday, 30 September 2018

Using your iphone as a TTY device.

Deaf woman left without fire alert systems and phone.


Mary James
When Mary James was left without assistive equipment, life became "very frightening". The 79-year-old, who is profoundly deaf, has waited nearly a year for a replacement doorbell, a textphone and fire alarms in her home in Caerphilly. 


Many people in Wales who are deaf or have hearing loss are being let down, Action on Hearing Loss Cymru has said. The Welsh Local Government Association said statutory services are under considerable strain. Mrs James has asked social services to help with her assistive equipment, but has yet to receive a replacement doorbell, and has been told that her textphone cannot be replaced. 

She ended up getting replacement fire alarms from the fire services. Without the right equipment, life "can be very frightening" for her. "I would expect them to provide equipment and also maintain that equipment if something went wrong with it," she said. "They don't seem to know about deaf people - and the equipment- and they just pass it on. I don't get any help from social services at all." 

Caerphilly council have said it is working with the health service to ensure the needs of people with hearing impairment in the area are met. 

Seeing the unseen...a modern horror story.

Image result for seeing the unseenDisabled people with mental health and other unseen issues on social media asking how do they raise awareness of something, you cannot see?  People are cruel and uncaring and I cannot cope with it.

Comment 1:

They are just not understanding it. They cannot empathise with something they don't understand. It's a bit like the assessors ... Pain is pain no matter what and everyone has a different tolerance level ... Think about it, a Splinter can cause ALOT of pain ... It would do assessors well to remember that ... I didn't understand a friend who has Fibromyalgia and Chronic Fatigue for years ..... Until it happened to me. People just don't understand there are some disabilities which are hidden.

Comment 2:

People who are deaf have these issues and a dual issue of misleading 'in-house' awareness too.  'Visible' deaf sign, the majority do not, so we don't get identified as having an issue except when we fail to follow and then we get mental health tags that are ridicule basically.  Another issue is 'take your pick' of labels and ID's, are you:

(A)  deaf, 
(B)  Deaf, 
(C)  Hearing impaired, 
(D)  Deaf-blind, 
(E)  Disabled, 
(F)  Culturally Deaf.

Do you have:

(1)  Hearing loss, are you 
(2)  Profound deaf, 
(3)  Severely deaf
(4)  Near deaf, 
(5)  Hard of hearing 
(6)  Very hard of hearing 
(7)  Deaf with speech 
(8)  Deaf without speech 
(9)  Deaf but cultural with it (Which actually isn't an issue, but it may well be developing that way!).
(10)  Deaf with (Or without) a CI.

I'm sure there are dozens more labels attached to degrees of loss and people with them that don't matter a bit because you cannot see hearing loss anyway.

You can be viewed any and all of these depending on the campaign you are running, or the charitable aim, its a complete shambles. The only area that has gained is the one that uses sign language presumably BECAUSE you can see they are deaf, albeit in clinical reality, this may well NOT be accurate either!