Wednesday, 10 July 2019

You aren't deaf enough for me...

Image result for you aren't deaf enough hearing aids#ATR's usual look at non-deaf sites relating to hearing loss, not easy as most are boring charitable awareness sites and ear wax issues B O R I N G! (No wonder we cannot run a decent campaign of any sort.)  Today someone decided the group he joined wasn't quite deaf enough for his or her taste...  I suppose it was one of these deaf people who assumed everyone signed or something.  A lesson to be learnt, most aren't!  The poster appears to not understand what hearing loss actually is either.  I just hope he or she finds whatever it is they are looking for.

#1  Thanks for the add but I'm leaving the group this isnt what I thought it will be basically hearing people are losing their hearing is in this group I thought basically this group was people whom already have hearing loss, all I'm seeing posts about hearing and hearing aids... I'm deaf completely and proud!!! I did use to wear hearing aids but no longer do gotten more deaf profound. Wish yall best of luck.

#2  You can be deaf and still relate to hard of hearing issues, after all, many of us have done it, from having good hearing to having poor hearing and then having none at all, it's about the journey as much as the destination, only be managing how you travelled can you manage when you arrive where you are at.  It's not about who is 'deaf' and who is 'HoH' or who has an HA or hasn't.  In part I agree to be bored silly with battery queries and ear wax and ENT visits etc myself, we should be exploring ourselves as people and individuals, as that aspect determines how you cope with it all.  

Not just a better hearing aid which can often delay the inevitable but leave us unprepared to the face the nitty-gritty when it can fail to be of any more use.  Statistically, when your hearing loss is identified you need to plan THEN  your life to face all aspects of it.  E.G.  What if?  Most issues with HoH are because taking up alleviation aspects lull them into a false sense of 'OK I can manage it this way', but your ears can do something else entirely and it can be like a ticking time bomb without preparing yourself for when/if the aid is no longer of use.  

#3  Believe me I know!  People will hang on till the grim end of it all with e.g. an aid of no use to them whatever, noise, being life...... so any sound will do.  It's about being realistic if you plan ahead properly, managing is a whole lot easier, unfortunately, there are no neutral areas or qualified people to advise you., and the deaf areas are a hotbed of bias and confusion as they haven't sorted themselves out yet.

It helps not to falter in believing who you are, OK your ears have gone rogue, YOU haven't, and you don't need to adopt someone else's version of who you should be either, essentially it doesn't work anyway.  I only wish I had taken my own advice as for 11 years  I ignored facing up to it.  I suppose you have to get to the bottom before you can get back up again...  Most HoH issues are down to denial basically, and today technology means you really can fool most of the people most of the time, but, not yourself.  But hey it's great while it lasts... or not.

Subtiled/Captioned webinars in real time.

I'm cured!

Image result for I'm cured
Offering up her usual contention and pro-deaf viewpoint for financial gain it seems, the list of contacts and sponsors seems considerable, I know Ricky needs to earn a living but... questioning the deaf cure. (Again, she did it thrice before), is the latest regurgitation.  

Obviously, and ignoring 'cultural concern' (since they AREN'T legally entitled to make any decisions on other people's children anyway), perspective needs to be included. 

E.G. If you had an option to restore sight lost, or wear glasses,  assist poor hearing with a hearing aid, or a CI, or to prevent a serious disability getting worse, of course, most parents would take that option, not least to ensure a better life for their child.  Introducing discrimination and inclusion laws doesn't address the basic want of any parent to do the best they can for their child, they don't have children to just fill up deaf schools and clubs and forever defend the fact they cannot hear.  40% of deaf children get mental health issues, would a 'cure' there be opposed too?  Whilst 'cures' don't really exist for deafness as yet (They will for most at some point), alleviation has increased our quality of life considerably.  

There are few areas of the deaf community apart from their social one that helps, and therein lies a primary reason to oppose any cure, since the opponents of 'cures' suggest 'they' want to keep isolating deaf people, and 'attack their right to be deaf', they play on deaf fears, which are grossly uninformed and unfair.

Obviously, a cure option for some will become relative in the future, as genetics find a way to prevent most deafness induced via rogue genes, so a child is born without such an issue to address anyway.  Die-hards know this, so they oppose identification of such genes too, again because they know a parent can then express a choice.  The row is about WHAT choices they opt for with no cure in sight.  We cannot nor want to tell deaf parents, what they must do with their children, equally, the same applies for others.  

Medical advice to take supplements or a minor op on the womb to assist a struggling foetus, e.g. to prevent some disabilities are taken up by deaf mothers as a matter of course, and, justified to 'prevent' some issue in a child as yet not born, curious how they DON'T see addressing deafness as an issue, is it challenging disability and other disabled people?  It looks hypocritical and belittling the issues of other disabled.

The 'battlegrounds' (Which mainly exist via these cultural die-hards),  are mere skirmishes in the main, alleviations and technological advances these days mean settling for sign or silence or even a single deaf social life and community, is not an inevitability any more.  We should be encouraging not limiting advances.  It's the politics of Canute.

The pay off is wider acceptance, more inclusion, and more options open to deaf people.  It's time what passes for a deaf community removed the naysayers and doom-mongers of the cultural variety preaching genocide and discrimination against 'hearing people' too.  It's mostly that who are disenfranchised and/or those who can succeed OUTSIDE the community anyway, big fish in small puddles basically, preaching paranoia.  They know access and alleviations for us all means they become redundant.  These days there is an element of making a living doing it, that suggests bias is essential to making that living, as is the increased hype, poor awareness,  and distortions of deaf need.

What they do not seem to understand is other areas of the world hold no such 'qualms' about cures, including the USA itself, and the UK (Who are amid world leaders on DNA and genetic research), along with Australia who developed CI's and India/Pakistan developing cheap or free hearing aids for their people, why would anyone want to oppose that?  Areas like China etc who plough billions into getting rid of disabilities of all kinds, as do 98% of all our 'charities' support research they aren't there plugging more of the same.  Those who want to preserve deafness have no point really.  They can masquerade it as 'cultural preservation' all the like, but the bottom line is that deafness is a sensory LOSS and a disability, it is a 'Norm' only in as much as a cure hasn't yet arrived.  When it does... and we need to prepare.

46 deaf genes exist they WILL be addressed at one point, but the reality is genetic deaf are a minority even within the deaf world itself.  It's well below .2% of the whole.  The rest can be down to illness/accident etc.. as the parents are hearing not deaf.  Apart from exceptional accident issues, everything is addressable, once the will  (And money), is there to do that.  There are few if any parents on the planet who would NOT take a decision to help their child if they could.  Or stand to be pilloried if they don't.

A child's future is decided by parents not, by outsiders, it's a legal right, and the demand to 'wait until a child can self choose..' is a blind, as many options and decisions have to be taken early on, else, it is too late after, (Which is why culturists, demand 'choice' later.)  They know any real choice isn't on the table then, how cruel.