To fight the unbeatable foe
To bear with unbearable sorrow
To run where the brave dare not go
To right the unrightable wrong
To love pure and chaste from afar
To try when your arms are too weary
To reach the unreachable star
Not all happy on the disability social site front it appears.. One poster insisting making ourselves invisible is why 'Invisible disabilities' stay that way after another responded suggesting some disabled contribute to, and actually enjoy being a 'victim', then all hades broke loose.
"I'm sorry if I gave the impression simply gritting your teeth and facing people down was the way I went, and the way everyone else can succeed. I tend to assume disabled/deaf whatever, know the background to things and so less requirement to explain, we are supposed to be self-aware. Ironically we are the least... so much for awareness...
It took me 11 years in the wilderness first, mainly to realise I was the architect of my own isolation. I went deaf sat at home, for days, weeks, and months on my own, and yes, I blamed everyone else for that too. You have to analyse yourself, face your limitations, and not front it out, suggesting you have none... or your issue is not going to be recognised at all... Be quite brutal really, e.g. IS this my fault for not dealing with my own issue? accept it's also quite logical to blame others.
You need to ID your strengths, dump the guilt, decide what you want/need and go for it. I don't think you can win on the 'invisible' thing unless you MAKE yourself visible, none of us, least of all me, is going to walk around with it tattooed on my forehead. People cannot make adjustments unless you make it clear what those adjustments are, and perhaps explain what will suit you, but it may well NOT suit the next person who 'appears' to be like me. First impressions count? Erm NOT! You have to actually engage too, not expect others to do it for you.
Disabled and others are pretty obsessed with the terminology, it takes their mind off dealing with what goes on mostly, YAY! its 'THEIR' fault not mine... they can turn on you for saying the term 'we', which cannot ever under pain of death be used. Then they post statistics to bolster the cause celeb quoting everyone else! Disability campaigning isn't based on logic. Better if 1,000s are the same as us, as one or two won't cut it, they don't see the conundrum at all.
The problem is a challenge to the status disability quo, we aren't all the same and the powers to be can struggle if there is no 'uniform approach' or one size that fits all, it makes planning difficult, and supply and demand don't gel. I know similar areas to my own with hearing loss, there are so many different alternative demands going in, only THE most visible are going to get the access they need. The rest are squabbling to get their particular need in, it's chaos at present.
In essence, the idea of a unified disability movement is an impossible dream. To be frank I don't WANT the support offered now, primarily because it is (A) not what I want, and (B) because of the dependency reliance factor, and (C) I would have to justify it every time... Ask ourselves the question do we WANT to rely on someone else to care/help/translate us, wipe our bum? We all approach inclusion/support or non-inclusion/access our own way.
I posted on a recent hearing loss blog, 'The next person that includes either a pair of hands or an ear, will get short shrift from me..' I am not my issue, I am me. Of course, access is a postcode lottery, e.g. unless you live in a large town or city where numbers can be seen and campaigns supported, you simply don't get it. The 'trend' such as it is these days is to drop support, charities and most campaigns from what I see, and go online hoping some random system rep actually reads about it or acts on it. They won't. Their employers decide what they can afford, not what you need.
We have to face up to things ourselves, is it hard? of course, it is... I don't think we have any choice. Anger and being 'prickly' is the first reaction to any disability, but the trick I think is not to make a 'career' of it and blame everyone else for NOT seeing an invisible issue, or perhaps not highlighting it yourself. Making yourself a victim or martyr isn't attractive...
There will be some saying 'Why is this poster saying WE? he doesn't speak for me...' etc. It is why disability unity is a myth, they are a crazy mixed-up bunch really, who recently thought it fun to endorse 43 emojis labelling them all... and opposing every other term applied to them by themselves or by others. 'Labels are for JARS' but adopting emojis or inventing your own is different apparently... The hearing loss area went 6 or7 times better by capitalising individual words and inventing a dozen other terms for not hearing well or at all... and attacking the rest... Of course, the system (And US), have stopped giving a S.H.*.T. basically..."