Sunday, 21 July 2019

The Impossible dream

Image result for to dream the impossible dream lyricsTo dream the impossible dream

To fight the unbeatable foe

To bear with unbearable sorrow

To run where the brave dare not go
To right the unrightable wrong

To love pure and chaste from afar

To try when your arms are too weary

To reach the unreachable star
Not all happy on the disability social site front it appears..  One poster insisting making ourselves invisible is why 'Invisible disabilities' stay that way after another responded suggesting some disabled contribute to, and actually enjoy being a 'victim', then all hades broke loose.

"I'm sorry if I gave the impression simply gritting your teeth and facing people down was the way I went, and the way everyone else can succeed.  I tend to assume disabled/deaf whatever, know the background to things and so less requirement to explain, we are supposed to be self-aware.  Ironically we are the least... so much for awareness...

It took me 11 years in the wilderness first, mainly to realise I was the architect of my own isolation.    I  went deaf sat at home, for days, weeks, and months on my own, and yes, I blamed everyone else for that too.   You have to analyse yourself, face your limitations, and not front it out, suggesting you have none... or your issue is not going to be recognised at all... Be quite brutal really, e.g. IS this my fault for not dealing with my own issue? accept it's also quite logical to blame others. 

You need to ID your strengths, dump the guilt, decide what you want/need and go for it.  I don't think you can win on the 'invisible' thing unless you MAKE yourself visible, none of us, least of all me, is going to walk around with it tattooed on my forehead.   People cannot make adjustments unless you make it clear what those adjustments are, and perhaps explain what will suit you, but it may well NOT suit the next person who 'appears' to be like me.    First impressions count? Erm  NOT!  You have to actually engage too, not expect others to do it for you.

Image may contain: 1 person, smiling, meme and textDisabled and others are pretty obsessed with the terminology, it takes their mind off dealing with what goes on mostly, YAY! its 'THEIR' fault not mine... they can turn on you for saying the term 'we', which cannot ever under pain of death be used.  Then they post statistics to bolster the cause celeb quoting everyone else!  Disability campaigning isn't based on logic.  Better if 1,000s are the same as us, as one or two won't cut it, they don't see the conundrum at all.

The problem is a challenge to the status disability quo, we aren't all the same and the powers to be can struggle if there is no 'uniform approach' or one size that fits all, it makes planning difficult, and supply and demand don't gel.  I know similar areas to my own with hearing loss, there are so many different alternative demands going in, only THE most visible are going to get the access they need.  The rest are squabbling to get their particular need in,  it's chaos at present.  

In essence, the idea of a unified disability movement is an impossible dream. To be frank I don't WANT the support offered now, primarily because it is (A)  not what I want, and (B) because of the dependency reliance factor, and (C) I would have to justify it every time...  Ask ourselves the question do we WANT to rely on someone else to care/help/translate us, wipe our bum? We all approach inclusion/support or non-inclusion/access our own way.  

I posted on a recent hearing loss blog, 'The next person that includes either a pair of hands or an ear,  will get short shrift from me..'  I am not my issue, I am me.  Of course, access is a postcode lottery,  e.g. unless you live in a large town or city where numbers can be seen and campaigns supported, you simply don't get it.  The 'trend' such as it is these days is to drop support, charities and most campaigns from what I see, and go online hoping some random system rep actually reads about it or acts on it.  They won't.    Their employers decide what they can afford, not what you need.

We have to face up to things ourselves, is it hard? of course, it is...  I don't think we have any choice.  Anger and being 'prickly' is the first reaction to any disability, but the trick I think is not to make a 'career' of it and blame everyone else for NOT seeing an invisible issue, or perhaps not highlighting it yourself.  Making yourself a victim or martyr isn't attractive...

There will be some saying 'Why is this poster saying WE? he doesn't speak for me...' etc.    It is why disability unity is a myth, they are a crazy mixed-up bunch really, who recently thought it fun to endorse 43 emojis labelling them all... and opposing every other term applied to them by themselves or by others.  'Labels are for JARS' but adopting emojis or inventing your own is different apparently... The hearing loss area went  6 or7  times better by capitalising individual words and inventing a dozen other terms for not hearing well or at all...  and attacking the rest... Of course, the system (And US), have stopped giving a S.H.*.T.  basically..."

USA: Deaf Mentor Training

DEAF MENTOR TRAINING VIDEO (FINAL) from Summit Studios on Vimeo.

3 days, how to be a deafie... doesn't look any more organised than the chaotic 'whatever' approach the UK uses!  (I thought brain-washing/indoctrination was illegal...)  3 days is ridiculous as a basis for being a mentor.  It isn't about seeing another deaf person signing, its about the role of Mentoring and client privacy and other issues also.  Are they checked out by police first etc?  As social workers for the deaf here have to be as do carers...  It would appear a dangerous loophole exists via 'cultural support'.  The set up 'looks' professional but...

BSL not good enough for Science.

Image result for Liam Mcmulkin
What's deoxyribonucleotide in sign language?  (Or, how the BSL dictionary faked it?). Explains 'Why Paddy Ladd decided sign was not the medium for his opus either.'...  

Why won't the 'Deaf'  use Signed English?  To keep deaf in the dark?  As he explains there AREN'T any BSL equivalents and he has to make them up himself...  Will that help if they still aren't in the dictionary? Finger-spelling 'DNA' won't cut it, when detail is important.  How can they train deaf to be scientists via BSL?

Liam was so frustrated by the lack of signs for scientific words, he created his own Frustrated at the lack of complex scientific terms in British Sign Language, a Dundee student has created more than 100 new signs to help deaf people express themselves when talking about science. For any new student, coming into a lecture theatre or a laboratory can be nerve-wracking - especially if you can't hear. 

That was the reality Liam Mcmulkin faced when he began studying life sciences at the University of Dundee in 2015. Born deaf, Liam was the first person in his family to go to university, after receiving an undergraduate scholarship from The Robertson Trust. He admitted having fears about what life as a student would be like, particularly when it came to lectures: "When I applied to university, I was worried about two things,"

"Firstly, I was at school with 10 other deaf people but now at university, I was the only deaf person. How could I communicate? "Secondly, English at university is at a higher level, would I be able to cope? "I thought I would just apply anyway."  Liam previously had to spell out scientific terms using fingerspelling Frustrated at the lack of complex scientific terms in British Sign Language (BSL) during classes, Liam decided to take matters into his own hands. "Watching the interpreters for a one hour lecture is very tiring," he said. "There are a lot of new words and scientific words are often very long, like 'deoxyribonucleotide' and 'deoxyribonucleoside'. 

"Sometimes the interpreter would be fingerspelling for ages and I was having to watch it. "We would make up new signs which meant it was easier next time, but it also meant I had to learn new signs which was very tiring."

Trustees leaving BDA over concerns about its direction.

Image result for ashley Kendall deaf
Tale of the tape....

February David Buxton leaves the BDA, 

May, Robert Adam, and Alex Dury leave.  

July, Ashley Kendall has.   

View Ashley's reasons here.    Just what IS going on at the British Deaf Association? (Apart from them still rooted in the 19th and 20thc!).  Has dogmatic cultural pursuit done if for the BDA?  Bad financial management? or oppressive and bullying leadership?  If they cannot hold their dynamic youth its all over for them isn't it?

Feedback (More on the site):

#1  "Thanks Ashley there is a law that allows people to speak out ‘whistle blowing’ this protects people who have to speak out. I’m afraid I personally lost faith in the BDA a long time ago over other issues but that was then ., now is now. If the charity is failing it it’s charitable object .. if it is not performing its duties. If trustees have no faith in the trustees the chair to function then it has a duty to report it .. well done for speaking out ... let’s hope something happens to save it , to unite deaf people and to become fit for today’s and the future needs times are a-changing."

#2  "What a dreadful state of affairs. Thank you Ashley for your honesty and integrity. You did the right thing in stepping down - there is no need to apologise because it’s clear from your vlog that the situation was beyond your control. I am a new-ish Member, and I don’t feel duly informed from the current Chair or the remaining Board about what’s happened. I’m not happy about that because it shows a lack of transparency and accountability. That is very serious. So I truly appreciate, so far, you and Abi giving your reasons as best you could. Thank you for that, and for all your hard work and commitment over the years. I’m incredibly sad too - things were looking so bright for the BDA and its new Board only a few years ago. But if we members have no confidence in the existing governance, then a vote of no confidence it shall be. 😢"