Friday, 11 October 2019

Hearing but not as you know it.


Touching documentary about Helen Willis who is totally deaf following a meningitis infection at the age of 2. She was one of the first in the UK to receive a cochlear implant, allowing her to hear the world around her albeit through impoverished sounds. Now she is flourishing at Oxford University, and despite difficulties in everyday tasks, she hopes to continue into research into the science of hearing. 

Helen's story began in the early days of the cochlear implant technology. Surgical techniques have now changed such that stitches and hair shaving are no longer required, and technology has improved to such an extent that people who received cochlear implants more recently are now able to perceive sound much more accurately (with some children being able to sing in tune and acquire local accents). Helen also received her implant relatively late in life, and outcomes are much improved if the operation is performed earlier. 

 We hope that this will help people understand what it is like to have a cochlear implant, particularly for families affected by deafness. If you know anyone who may benefit from watching this documentary, please share this to them using the links above. We also hope that the documentary will encourage everyone with a cochlear implant to pursue their dreams and not be demoralised when they are faced with obstacles because of their deafness.

Deaf at Work

Deaf Employees At Work from Sign Solutions on Vimeo.

Seems to debunk the myth Deaf are not getting support, it's just a postcode lottery.  All you have to do is move to London.

Deaf for a Day

Trends in Assistive Technology

How to include deafies...


Basic advice, but impracticable in operation in a crowded social area.  Deaf have to allow for situations where people are not going to take the time to accommodate you for any long length of time.  Most 'deaf' plan well ahead so situations unexpected you have an answer to them.  They don't attend the social gatherings to lecture others on what they should be doing to include, I never have and never seen that awareness working either.  I am well aware of what will work for myself in various situations and what won't.

The 'Deaf' area won't attend such areas anyway without a terp in tow etc so the awareness for them is hardly an issue.    They would have ensured that access was there before they went.  Vlogs like this are OK but we don't want to see them here, or 10 things hearing must do before we will even engage with them, we know what needs doing, such awareness needs to be put out to the mainstream area, because they won't be logging in to our sites unless they are in the field of support anyway.    Mostly such awareness is a self-creating job for the more able deaf or their charities. Whether them raising awareness for a living is for a wage or not who knows?  Current areas promoting awareness are a shambles but justified because it can provide jobs for the deaf.  I'd prefer real awareness raised but...

Hard of hearing and deafened have very different approaches to inclusion, technology being a primary thing with them.  Hearing loss means you never know if you have heard properly or not, so uncertainty is a norm and stressful norm at that, the deaf have no such issues because they KNOW they cannot hear anything useful and don't stress themselves out trying. 

The  HoH have no awareness area in the UK at all, it is often a standing joke the HoH have found their own cure already since no campaigns are supported or run by them, they must have found that cure.  There are charities, but hearing aids, db ratings, allied with ear wax issues, and cleaning up hearing aids, drive what they do, its mostly a 'clinical' approach as averse to a people-led one.  It's become somewhat 'Viral' on youtube to see who has the most awful amount of hearing wax to remove, and graphic vids of ear wax removal draw in 100s of weirdos.  

(And yes I put this response TO the hearing areas we must all practise what we preach, raising awareness in a vacuum is never going to work.)