Monday, 9 December 2019

Travelling whilst deaf at the BBC.

The End Of Deafness...

Image result for Dr Syed Akbar Abbas, a consultant ENT surgeon and faculty member at the Aga Khan University Hospital
A Cochlear implant can enable even profoundly deaf people to hear, says expert. 

At least two in one thousand children in Pakistan are profoundly deaf, which means they have zero sensitivity to any sound. Even this ratio is just an approximate as the government has neither updated data about people with such disability nor has it initiated any programme for the cure of such people. Dr Syed Akbar Abbas, a consultant ENT surgeon and faculty member at the Aga Khan University Hospital, gave a well researched and comprehensive talk on Saturday titled ‘End of Deafness: The Role of Cochlear Implants’ at The Circle – Caring for Children, a therapy centre for children suffering from autism, speech and language impairment and other learning deficiencies. 

Dr Abbas, who is one of few certified cochlear implant surgeons in Pakistan, informed the gathering that even profoundly deaf people can hear – with the aid of a cochlear implant. This neuroprosthetic technology has been in use in the world since the late 1970s but Pakistan first used this in 1998. So far, over 3,000 people have received cochlear implants in the country, of whom children make up the majority. However, this cure is available only to the small affluent segment of society or to those who have access to some philanthropist, because of the fairly exorbitant cost - each implant costs around 10 to 15 thousand US dollars. 

The audience included parents of children with disabilities, caregivers, audiologists, potential donors and concerned citizens. It was said that since the cochlear device is too expensive and a majority of the people in the country cannot afford it, 70 to 80 per cent of the surgeries performed here were sponsored by individuals, including the surgeons themselves and philanthropists, due to which there was a dire need for a state-run programme that could provide funds for cochlear implant. “If a child is diagnosed with deafness before the age of two, there are excellent chances of his full recovery but the chances keep reducing as the child gets older,” Dr Abbas explained in his presentation. 

"The implants are the last resort to revive hearing sensation and are recommended only if every other option has failed. If a person has even a little bit of sense of sound, they are strictly recommended to stick to hearing aids.” The speaker took pains to explain that the Cochlear Implant was not an automatic panacea, but required a considerable amount of post-surgery work and was dependant on mapping and therapy following the implant. He spoke about some cases in which the implant was inserted in children but their parents did not bring their children to the speech rehab centres because either there were no such centres in their localities or they were simply unaware of the post-implant needs. 

There were cases where some parents even wanted to remove the CI incorrectly thinking that it was no good. He said often deaf people are reluctant to undergo any such cure that can make them start hearing because they are at ease with their disability and have close bonds with other people having the same problem. They think if they start hearing - and speaking - they would no longer be part of the ‘deaf community’, so strong is the bond amongst them, Dr Abbas remarked. He informed at the event that only in the United States, the deaf community comprised seven million people and they received special grants from the state. 

 He said the public was not well aware of the cochlear implant and the federal and provincial governments seemed less bothered about the deaf people.

Conference on quality education for deaf

Image result for Haryana Welfare Society for Persons with Speech and Hearing Impairment (HWSPHI)In a first-of-its-kind initiative, a two-day international conference on providing quality education for the deaf which is organised and led by educators who themselves are hearing impaired will be held in Haryana''s Rohtak from December 10. The conference is being organised by the Haryana Welfare Society for Persons with Speech and Hearing Impairment (HWSPHI) in association with the University of Central Lancashire, UK. The State University of Performing and Visual Arts is partnering in the event.

"This is the first-of-its-kind conference organised in India which is completely deaf-led and focuses on identifying the key challenges and coming up with solutions towards quality education," HWSPHI Vice-President and Chairman Sharanjeet Kaur said.

Experts on education for the hearing-impaired from India, the UK, the USA, Uganda and Canada will attend the conference. Approximately 150 people from across the nation are expected to a be part of this conference, she said adding, the event was recognised by the Rehabilitation Council of India (RCI). Kaur further said, "Experts in education for the hearing impaired who themselves are suffering from such disability will train sign language trainers. I think no one can better describe and explain sign language than them."

Pallavi, who is a project planning manager at HWSPHI, said every country has their own sign language which is based on that nation''s tradition and it will be for the first time that so many sign languages of the different countries will be expressed and interpreted in a conference in India. There will be many stimulating brainstorming sessions and panel discussions in the conference, she said, adding it also carries Continuous Rehabilitation Education (CRE) points which are mandatory for special educators and rehabilitation professionals.

The Haryana Welfare Society for Persons with Speech and Hearing Impairment is perhaps one of the largest and oldest organisation in the country working for development of children with hearing impairment.  It has been working since 1971 in Haryana and neighbouring states towards education, skill development and rehabilitation of persons with speech and hearing impairment. 

[The British input will be interesting given sign language is not a priority here in deaf education and deaf schools are disappearing.  Maybe they will suggest inclusion in the mainstream a far better option than any deaf school? We do wonder if using such terms as rehabilitation helps the cause much.  Wasn't Lancashire the deaf area that had its major support charity collapsing in financial disarray because of OVER-focus on BSL?   Inclusion did it for them.]