#1 I'm feeling a little lost I see all these posts about equipment people can get ? They just shoved me my hearing aids and off I got sent 🤷♀️. I told them I'm finding it really hard with the phone and hearing on it they weren't bothered said this is all they can do 🤷♀️.
#2 I agree, all of the support and information I have received has come from being part of this group, thanks, everyone.
#3 This is at the root of all HoH issues, isn't it? 'You have hearing loss, off you go with a hearing aid..' then when the aid is no longer able to effectively allow you to hear properly, that's it. There is no advice day one, your hearing could and probably will get worse to the point the aid is mere decoration, so you should start learning how to cope with that inevitability. But no awareness or support exists designed for that.
Instead, we tend to breathe a sigh of relief the aid enables us at least to a point where we are just about comfortable with it, and noting an occasional sound here and there, then when it doesn't we ask about CI's, or text option/assistive devices AFTER having spent years not bothering. If we aren't in total denial, we are naive as to future possibilities and not equipped ourself if/when it happens.
Its no use when we finally admit to ourselves, that's it, I am to all intents and purposes deaf now, and THEN complaining there are no systems in place to help us 'move on' Moving on starts when you are diagnosed as needing a hearing aid, NOT, after it is no longer any use to you. You would think we learn but we never do. We live in hope mostly and hang in there for the faintest of sounds we can still manage. To then attempt sign language, change of lifestyle, and social areas, or take a stab at lip-reading is too late, our die is cast. over 86%+ fail.
Neither sign/lip-reading systems are designed for the loss experiences you have, we should have demanded proper systems at day one, then, coping and managing would be far less an issue. I don't know anyone who has spent half a lifetime HA dependent and then losing that, who has then successfully managed any coping transition after that works, either you do it day one or not at all.
I Just wish I had taken my own advice then. You get lulled into a false sense of coping and then the reality kicks in and there is nothing there basically. Today we live for the technology to communicate as none of the traditional approaches of sign or lip-reading work if they ever did.