Tuesday, 17 March 2020

I want one !

A slip or trip, a collision, an allergic reaction, a seizure, a heart condition or medical emergency ... it happens every day, everywhere on earth. It can happen to you or someone you love. 

If you, or someone you love has been hurt this product helps authorities notify family much faster. If someone you love is rushed to the Emergency Department, chances are they won’t be capable of providing this vital information. Without up-to-date Emergency ID it often takes hours, even days, for authorities to track down and notify relatives. However, a simple, In Case of Emergency USB device on their key ring or in their wallet or purse could be life-saving. 

The USB file contains their vital information: Current medical conditions and medications, allergies, contact details of relatives, friends, carers and doctors. The file can be read by all computer systems. It will hold over 200 pages of information but is usually restricted to the absolutely essential details. There is no need to load information that a thief could use; no address, no date of birth, no bank details etc.

Printable communication aids.

Might be handy if you are self-isolating.


Introduction to lip-speaking.

Hearing loss research trials delayed by Virus.

The French company Sensorion has been forced to delay a phase II trial in people with hearing loss due to slow patient recruitment amid the current coronavirus disease (Covid-19) pandemic. 

The clinical trial is designed to test Sensorion’s lead candidate drug in people with sudden sensorineural hearing loss, a rare disorder where the patient can go deaf within several days. The trial results were to be released late 2020, but the company now expects to release them in mid-2021. Nawal Ouzren, CEO of Sensorion, stated that slow patient recruitment caused the delay, as well as hospital resources being reprioritized to handle the Covid-19 outbreak. 

The global outbreak — labelled a pandemic by the World Health Organization last week — threatens to overwhelm healthcare systems around the world without an effective vaccine or drug approved for the disease. The company stated that it will keep monitoring the Covid-19 situation, which is changing very quickly. 

“We are doing our utmost to ensure we can provide the clinical data set as quickly as possible,” stated GĂ©raldine Honnet, Sensorion’s CMO. Sudden sensorineural hearing loss occurs when the sensory hair cells in the inner ear are destroyed, most often for an unknown reason. Sensorion’s drug is designed to treat the condition by protecting hair cells from damage. Sensorion raised €20M in a bonds issue last year to fund the phase II development of treatments for sudden deafness and acute unilateral vestibulopathy, a rare disorder causing vertigo. 

The company was confident that the funding would sustain the programs until late 2020. However, this latest delay, along with the phase II failure and discontinuation of its treatment for vertigo in December 2019, have proved big setbacks for the French company. 

UK BSL Program to offer Coronavirus advice live.

After numerous concerns on deaf social media (Mostly unfounded), that the government was not making coronavirus advice accessible to the deaf, today will see their BSL Zone program offer a live question and answer session for the first time, so at least one of the BSL areas is doing what it gets funds to do anyway (I.E. INFORM and EDUCATE!)

On a number of deaf social media sites complaints were made against the government not offering BSL with daily briefings, but have been ignoring their two subsidised BSL programs (BSL Zone and SEE HEAR), who were doing it anyway.  Which raised questions why were the deaf demanding stand-alone BSL output and then NOT utilising it?  Also, captioned parliament output was available that a lot of deaf seemed unaware of.

It would seem the apathy of deaf people to politics has left a lot of them unsure how to cope with a national health issue.  One 'Plus' may come out of all this in that self-isolation and limited social interaction may well mean hearing communities start including and supporting the vulnerable in the deaf community.  

However, there are deaf people who will not be able to cope with isolation over many months as they are isolated already, again media output for the deaf needs to adapt and quickly to filling what is going to be a huge void in socialising which is more important to the deaf than many other priorities.  Social media may come into its own as the deaf switch to socialising a lot more that way, but, spare a thought for older deaf not only unaware of deaf TV output but, not online either.

Now is the opportunity to learn additional and practicable means of getting communications more effective too, maybe learn to lip-read better, or be more literate and read more? Those needing support are going to have to make it clear they need it and the best way to make it work.  The virus has no respect for personal pride.

If/When your otherwise unknown hearing neighbour steps up to help you you are going to have to find alternatives anyway aren't you?  It will be interesting to see how the BSL media approach this issue.

We would like to see all BSL areas online moving outward to hearing mainstream immediately to explain how help/communication can be more effective, bearing in mind demands 'sign or else', would be seen as negative as we all need (Hearing and deaf people), to work together.  How the deaf react to this serious health threat can be a positive, but only if we treat it that way.  Your deaf friends will not be able to visit you and your social areas subject to closure.

Keep calm friends.