Saturday, 9 May 2020

East Lancashire Deaf Society.

Companies House faces biggest overhaul in 170 years - Evans ...Companies House has reported 13 out of 17 officers running the ELDS organisation have resigned en masse.  Not so long ago ATR had reported mass resignations at the British Deaf Association trustees, leaving just 2, and it all seems to suggest irregularities and bad financial management is at the core.  

We believe the real problem is BSL using deaf hiring their own and them without sufficient qualifications to run care or support business for others effectively and given their core message is culture and sign promotion not care.  ELDS lost deaf staff in double figures and left over a 100 deaf with unsecured back up as a result. 

ATR also covered the AOHL the UK's largest hearing loss charity, selling off its assistive devices arm and deaf care homes because of cash flow problems.  What seems a real puzzle is the ELDS is now a 'one-man band' with a Mr D Alker as the sole person responsible for it all overseeing 4 uncertain other staff. 1 man and 4 others?    What is also unusual is there seems to have been no investigation into the running of the ELDS to ascertain what went wrong? Company house has the clout to do that, why aren't they?

Another issue was the mass trustee resignations at the BDA were not investigated by the Charity Commission either to determine the reason why so many people left in such large numbers or how a charity like the BDA, was allowed to legally gag responses from its own members asking why? 

Despite them moving quickly to admit replacements strictly on the basis they cannot challenge the BDA hierarchy or they are out.  It would seem the majority who left did so because that Hierarchy was anti-integrational, old fashioned,  allegations of bullying were mooted, and them unwilling to move deaf people forward.

There seem alarming similarities between what happened at the ELDS and the BDA, they can't count! else the alternative is unsettling, we are talking many £1,000s  being wasted or lost and few if any benefits coming from its use.  A major crisis of mismanagements where deaf are losing support and jobs as a result of rampant amateurism, favouritism, bias, alleged bullying, and the closed shop approaches this deaf sector operates by.

Frustratingly such areas are still being handed millions UK-wide in funding and nobody asking what they are doing with it.  ATR asked Sainsbury's stores had they asked what the deaf were going to do with the money the store was giving them?  They said no, we never ask that we just allocate money raised by choosing a charity, but we don't ask what they do with it!  ATR said 'great! put me down for next time...'.

Is the writing on the wall for major charities and self-employed deaf business' posing as charities?  Charities concerned with deafness and hearing loss you have to be amazed they exist at all, they are apparently surviving by relying on their cultural claims and BSL dependency which they re-branded a right.  

The charity commission has constantly been attacked for not ensuring charities concerned with the deaf have available trained staff to manage what their aim is supposed to be.  If it is just a few well-meaning trying to help a few others that is acceptable, but surely NOT when many £1,000s in funds are at stake and care and support is the aim for quite seriously disabled and vulnerable people? (who would otherwise in the mainstream only get fully trained professionals doing that?)

The charity systems have moved into vulnerable care/support/medical areas and most, with few qualifications to do that and it seems, a total inability to manage their own finances.  Care versus culture is a real issue.  ELDS is just one area but they are just a tip of a very large iceberg that lies beneath them.  It is estimated 46% of all funding has been a complete waste, with no end result, a failure, so talking many £M's...

The CC appears to not ask how they can function effectively or at all before awarding them the status of being a charity.  Just send them a letter saying you are going to save everyone, and they will rubber stamp you as a charity, it's a bloody farce.  Once a charity you can then appeal to funding areas for money no problem.  If you cannot be arsed to raise funding yourself ask any one of half a dozen areas online who will do it for you for a cut, cushty!

Friday, 8 May 2020

Edited Highlights (The Deaf life).

Poll: Which Business Trends Should Fortune's 'Crystal Ball ..."There is no BSL access for the English coronavirus updates, its discrimination.".

"Westminister has not. Even if they did as I said and many others have said BSL translation doesn't get the most important things you need across due to signing limitations, and the incompleteness of BSL itself."

"I won't be taking it up a deaf week or not.  As for other areas unless the frontline workers have learnt BSL they aren't going to be able to stop and explain things."

"There is BSL TV access, it is just on at a different time and channel, that ATR blogger gave about 20 links most of them daily and live what is the BSL fuss about?  Welsh, Scottish and Irish BSL updates are at different times, albeit the London one is not BSL 'in vision' live there is plenty of access there."

"I suspect the BSL terp would struggle with 3 people taking questions from 3 or 4 others, that ask for in-depth detail and the other regions of the UK only have to sign for one person to cover, not 3.  Some of whom are scientists or health professionals using technical jargon, most BSL interpreters do not have specialised skills in other areas like health, further/University education, and science etc it's parroting what is said, the interpreters also do not have time to break down questions and answers via detail via sheer lack of time."

"That would expose BSL as having less reliability and accuracy than is claimed wouldn't it?  I suppose the terp won't risk it. If deaf can't read titles they aren't going to get much from BSL either are they?"

"I'm constantly amazed the deaf get anything from live translations on TV I watched BSL updates this week on 4 areas of the UK and not one of them gave anywhere near 50% of what was actually being said, the subtitles exposed that.  These deaf are then going back to their own area asking what it was all about."

"It's how it works, word of 'hand' I gather, the less aware or able will ask the more able and aware and make sense of things that way, it's a system of Chinese whispering it was described to me although the end result of that is a mystery.."

"As others have said even IF you learn BSL the chances of medical staff or others being able to respond that way is virtually nil, if they did the deaf would not need Interpreters. Stick with what we know will work for us, not what 'works' for others."

"The 'language' appears incomplete and there is a bit of 'emperor's new clothes' about its effectiveness. As a 'social tool' with fellow users obviously, that does work for them, but when it comes to learning things, working, evidence of it being a 'stand-alone' language, and 'translating' from another area effectively, huge holes appear.  Then they blame the hearing again, not the translators they rely on,  the reality BSL doesn't cut it, or even the lack of their own awareness.  I'm sure many hearing don't take it all in."

"The deaf just see black and white, and can not see these holes, and I take a pinch of salt with claims they can fill in 'all the gaps and details' their support has left out. It's a life of edited highlights backed up with unsubstantiated claims the 'rest' (Details), are not as important, or, they can fill those in themselves, I would say PROVE it."

"We need to understand the Deaf have no hearing reference point, and the BSL grammar the poor man's English seen in a visual format, the claims signs are 'concepts' they can easily read into I doubt a lot, The only way that would work is if they can read minds as well. We could suggest that in part because we are able to anticipate flows of speech when we cannot hear it, because of pre-memory recall, but it is not something they can do."

They will continue to support BSL till they drop off their perch but it is not an encouragement to younger people who want out of the deaf straightjacket and not settle for a lifetime of guesswork it is bad enough we have to.  They won't stop until everyone learns what they use, which suggest a whole generation are never going to be in it.  Smart money is on medical and scientific progress rendering deafness and hearing loss a minor issue or 'cured'.

Thursday, 7 May 2020

Clipomatic App



CLIPOMATIC LINK  (Apple).

The Killer in our Midst.

Covid-19 | New ScientistFace masks, lip-reading and the silent killer.  Should HoH adopt sign instead? (Advice during this 'Deaf Week'). A few responses not at all that confident BSL is an answer OR even lip-reading is.  

The general gist of responses suggests it is NOT about wearing a clear mask but taking responsibility to not risk others and adapt to survive.  Clearly what we have been doing up to now did not stop the virus at all.

No, I don't think sign language would be much help you would still need a 'middle-man/woman' for it to be effective, you cannot be assured medical staff can sign, most don't, and prolonged use of sign demands a higher skill in it, so a basic ABC is not going to get you far.  

I agree, I am reluctant to promote a mode the majority of HoH prefer not to use, and the Deaf week is not about us or OUR needs anyway, it is a 'celebration' of sign language and their culture and week to promote awareness of that.  I suppose we should complain about non-inclusion but I am past caring what they do.

Yes, concentrating on alternatives to PROTECT other people and not require them to remove PPE is the priority, 'Save Lives' is what we are asked to do, not risk them.

I don't want to be blamed for asking others to take risks for me. There are text options, and there are medical flashcards that staff can use to explain any process in health treatment we need to know, we need to be inventive and adapt,  the NHS has had to do it, so must we.

BSL is insufficient a language to cover medical explanations so you would need to fill in lots of gaps yourself, the Deaf BSL user has a lifetime doing that, and settles for a lot less than we would and is reliant, (but confident in their support), to ensure they are kept safe and informed.   

HoH don't obviously, they have issues of reliance, support, and independence, a lot are still in denial about their degree of loss, or what can alleviate it.  

I doubt there would be much demand to take up reliance on sign language, from what we read they only have a few 100 translators for 98,000 of them, where would HoH back up support come from? We may not want a basic BSL terp but people trained with HoH not deaf.  Would the BSL user accept a re-training program that changes how their terp operates?

We don't have any HoH support nationally organised.  We are also unskilled in using support designed for other people. It's a non-starter just a BSL promotion. 

HoH should be using this opportunity to set up systems they currently lack, (Which is about 85% support basically that we don't have), and addressing a UK-wide system that is designed for our use and our needs.  Now that we cannot always rely on family and others to make those calls it is time we had a system where we can do this for ourselves.  We've sat on our hands for the last 40 years.

I am uncertain demands for others to expose themselves to the virus is what I want to do at all, nor criticising others for not taking that risk for me.  It is not a simple matter of having difficulty reading lips, that isn't even awareness.

A clear face mask may partially help but it is dependent on how good your lip-skill is and how accurate the speaker is, how much use you can make with the hearing aid etc, and as we know from bitter experience, most people are very poor and unclear speakers generally.  

Medically, a clear panel is an insufficient protection for ICU staff too.   On those grounds alone a non-starter. It is hard, but there are considerations and adaptions we have to take into account, there is a killer stalking us out there, and we cannot see or 'hear' it. Lip-reading through a mask is the least of our problems.

Wednesday, 6 May 2020

Effective communication to Deaf/hoH

Fire Alert/Help

Cheshire Fire and Rescue Service is highlighting the importance of deaf people having the right smoke alarms to keep them safe. 

People in Warrington and elsewhere can get vital information on smoke alarms for people who are deaf or hard or hearing by visiting HERE.  Smoke alarms save lives and give people valuable time to escape from house fires and a whole range of alarms have been designed specifically for the hard of hearing, with features ranging from strobe lighting to vibrating alarms. These specialist alarms can save lives, alerting residents to a fire in their home even if they remove their hearing aid at night. 

Deaf people can place a vibrating pad under their mattress or pillow at night. If smoke is detected, the alarm will sound and set off the pad and a strobe light will flash to assist in waking them. An emergencySMS service has also been developed so people who cannot make voice calls can contact 999 by text from a mobile phone. Since September 2009 the emergencySMS service has successfully handled hundreds of real emergency calls. Head of Cheshire Fire and Rescue Service’s prevention department, Nick Evans, said: “It is vital that people who are deaf or hard of hearing are still able to contact the emergency services and have the right technology in their homes to protect them. 

“You can get help and advice about the most appropriate equipment for you to use via our website. Ordinarily, we also can offer those who are deaf or hard of hearing a home safety visit, which gives them the opportunity to get invaluable advice about their smoke alarms and planning an escape route. “If anyone knows someone who is deaf or hard of hearing I would urge you to ensure they are aware of the help and support available to them.” 

To register for the emergencySMS system, text ‘register’ to 999 and follow the instructions sent back. The service was developed by The Royal National Institute for Deaf People, BT, Cable and Wireless, the Department of Communities and Local Government, OFCOM, the UK emergency Services and all mobile operators. For more information, visit HERE.  

Information on the website is also in British Sign Language.

Blink and you will miss it.

Hooray png 9 » PNG ImageHooray !! It's Deaf week! Really? I hadn't noticed as every week is deaf week for me.  It's just a BSL thing...

The thing about UK deaf awareness is they don't really raise any outside own clubs or sites online and it isn't an awareness that is inclusive but exclusive to one area of quite disabled deaf people who see no way out of their issue.  

We'd all much rather a proper awareness that takes place  365 days a year out in the mainstream, and not the odd week ONCE a year, which in reality has turned into a celebration of BSL, not an awareness gig because deaf lack the confidence to go for real inclusion.

They make excuses they sign and others don't so it is not their fault, they will campaign until everybody else signs like they do or promote their own isolation so the risk never gets taken where they have to make more effort to address why inclusion, awareness, and equality is not really working for them. It's just a never-ending row about being discriminated against.  You get the occasional skirmishes, then the rapid retreat to the community again.  They don't see how that is seen by everyone else, as a lack of real desire to act on what they demand and take their place in society, and not just a novel area that communicates with their hands because they don't hear anything.  They are more than that so let's see it.

There is no point 'preaching to the BSL converted' on their own sites, you need to get out there pitching and including yourself.  'I sign, they can't or won't so I am staying where I am'.  Of course, that is never going to work, is it?  Until that effort happens no awareness campaign is going to get anywhere it is just 'BSL by rote' or sheer habit, with no real desire to move away to the inclusive angle which after all, is supposed to be why deaf campaign i.e. to be accepted and included as equals.  That cannot happen by remote.   

We gather areas like the BDA and AOHL etc have own awareness approaches and indeed did not the BDA say it did not recognise the official deaf week because it moved away from the community and BSL emphasis? The BSL being not the right 'kind' as they know it. So they all went introspective again. 

'Protecting the 'Deaf Space' is reinforcing the deaf isolation let's face it.  It's their ONLY space.  It's little to do with respecting language, community or culture, but a refuge to avoid making the effort to include yourself.  By all means have deaf friends and clubs, but the rest of life goes on 'out there'. Don't be a spectator.

The excuse being if deaf don't stick together culture will fall apart, sign language will be sidelined etc, so these deaf never make up their minds what they want.  Computer says no... All we will see this week is randoms doing a bit of signing ABC for a few days and then back to the 'nothing really changes' stance.  It's time the Deaf campaigner came in out of the cold they are enjoying a little bit too much.

Monday, 4 May 2020

Deaf Mental Health Trust.

Masks again!


So now they know you have hearing loss, are they then meeting your need?  As we know next to nobody has any awareness.

How Hard of Hearing are coping

How Suicidal Thoughts Can Become a Coping MechanismOn Social distancing and mask-wearing being a hindrance to communication, more general gripes HoH talk about.

Social distancing. I just think, what's changed? we are always socially isolated and mostly we have adapted, perhaps we are coping a lot better than those with full hearing and access to everything, I just wonder if they will learn how it is for us ALL the time, and be more considerate. A lot of elderlies I know say nothing much has changed for them on a social level.

Hard of Hearing Clubs? Curiously there are next to none really viable, one or two I did find struggled to adapt to me because I was profoundly deaf. I just felt I was not them and Not with the deaf either. I also managed a bit better than they did. Like most, I am tired of deaf versus hard of hearing and which format is best. 

HoH I think have lost their point they don't campaign, they don't challenge, the deaf are in there challenging every single time and every day, they will complain about anything and everything.  It is why they get what they need and HoH don't. Maybe it's that old chestnut about us all being in constant denial.

Choosing your battles:  Choosing your battles is what it is all about. Yes, we can flaunt our CI's, our hearing aids, or suggest we can lip-read whatever but only in the certainty we have a plan B sadly a lot don't. Awareness advice is still rooted in 1971.  Wearing a hearing aid or CI can still suggest to others OK he/she CAN hear with that so... then we get all the issues of us not really following everything and them getting frustrated.. 'you wear these things? you STILL can't hear? Why?'

The clue is in Hearing 'AID'.

Awareness that hasn't worked in my view for the last 30 years and still chants the same mantra 'If you do this or that.. then I can follow', but, maybe we still can't. It takes real courage to say I really will not, or haven't been able to follow you in everything, can you please use this (Whatever format you know WILL work for you).  

Basically, you should sort out what is effective and stick to that and not suggest something else.  Everything you have or wear is an aid not a cure or an answer.

Other social pressures can put barriers in your way that have nothing to do with the alleviations you use formats you communicate with, or the people you are to. Fessing up to hearing loss is still a real issue with many, even when we KNOW that hearing aid may have become little more than a fashion accessory really.  

A lot don't know how deaf they really are and winging it.

There is no equivalent to the ear. 

I've been in situations where everything that can be done to help me follow still hasn't worked. Then it depends on if I am happy with what I got, it's important then to set the bar, and know yourself and what you will settle for.  100% being unrealistic an expectation or even to campaign for, we just may not need all that or are unable to take in 100%.  We live a life of edited highlights.

Family support an issue? 

So you are saying to stop using my family to help?  I am a burden on them?

Family are perhaps the only ones making allowances, but I have never personally asked my family or child to ever do that, my issue is my responsibility, I suppose everyone has own choice. 

The problem then is what do you do when they aren't available? especially now where contact is limited anyway.

I suppose for some hearing loss areas they really sort of fall into that sort of family support situation mainly because they don't have an alternative or it is simply easier. I wouldn't want my child to see I could not manage.  They have own lives to lead.

For deaf its a norm isn't it? they just use whoever offers to help and don't worry about that. They don't see it as reliance on others like HoH do.

Fortunately, I am not reliant. I'm not going at others for whom it works well and they are happy with that, but as an aside I just think at times if we all do that then we don't get to force support systems in place we do need,  it becomes a chicken-egg issue.  It's a decision you need to make day one you realise your hearing is a major issue. Start as you mean to go on.

I've lost count of areas such as a GP or hospital who say can't your family help? can't they phone? can't they do this that and the other for you? instead of them providing what they have to by law so its an issue that gets blurred. 

lol, I said OK next time I have a medical issue I'll send THEM instead...

I appreciate some of us are stuck between the devil and the dark blue sea... each of us approaches that differently. Maybe we really shouldn't.

I think the family are a problem of our making. If you had to see a Dr about something really personal or attend a bank about sensitive money issues, then you don't want relatives there minding your business, do you?

I know!  I went to the bank to discuss a money problem and explained I cannot hear very well at all, and they asked did I want a form to give to a family member to act as my carer or a legal representative? I was shocked.  They wanted me to give the power of attorney to someone with hearing instead, no way!

Medical issues:  Try the clinics, my spouse and I decided 4 kids were enough of a family and were asked to consult with a Dr regarding a vasectomy.  The Dr questioned my reasons for having one. But they only had a woman Dr and I did not want to discuss it with her, I wasn't happy with the way she asked why, or, why she needed to know about my sex life.  Why was I expected to consult a Dr at all. Women can choose abortion or not, their body, their choice etc.. so why can't I get a vasectomy if I want one?  It was as if the man was not entitled to do it without a women's consent.

Sunday, 3 May 2020

OUCH (II)

Ouch - Comic Expression Vector Text Royalty-Free Stock Image ...Many thanks to OUCH too, for the response to my blog, I believe a few more facts about the deaf community (as I see them),  can help for understanding things are not really what they seem and you have to get between the lines to form an opinion which hopefully you will compare to other deaf views for balance assuming the cross-referencing covers ALL types of deaf and HoH areas.   

Obviously, there is a lot of printed matter in my response, unfortunately, that tends to suggest to the sign user I am not including them, but it is MY communication format and I believe most deaf have no issues reading.  Any signing I would undertake would just be targetted and divert away from the point.

"I don't want immersive BSL on the curriculum, because I think deaf need more emphasis on literacy and FE as well as lip-reading options etc, they aren't getting at present, (lip-reading tuition is a gross failure mostly with an 83% fall out rate and no qualification to attain, so no encouragement to really advance the skill either).   Attend any class it will only consist of those WITH useful hearing, attend a BSL class it will ONLY consist of hearing people.    A lot of deaf can come to a complete standstill on leaving school and after having what really is a 'protected'' environment do not cope well after.  It all contributes to the problems they then face as adults.

The sign is seductive and easier for the deaf to master, no surprise then that they don't want anything else despite BSL not really being an 'In' to what they really need, and requires 1,000s of interpreters for it to work.  There is a lot of misconception regarding BSL as an 'In' to greater literacy/English and thus making it easier for the deaf to work and to advance, but, this is not what is happening.  We get exceptions to that rule, but not many.  They are just asking for more BSL support and go-betweens instead as they do own thing.  Learning another language is great but the deaf reject English grammar so aren't really 'bi-lingual' as we understand it.  They sign therefore they are etc...

BSL is based like most countries on the 'host language', ours is English.  BSL is a rogue sign option, where Signed English is more reflective of what everyone else uses.  It allows I think liberties to be taken on its use and promotion.  It also tends to cover up areas in the deaf community that have learning issues, it gets passed off as a 'BSL norm', and a poor reading ability dismissed as not existing, their grammar is different, end of.   

Further education or even vocational support to improve their own signing and communication abilities isn't happening.  Hearing people don't stand still, if they did they would not work or advance, so the deaf cannot afford to do it either, yet, educational options after leaving the school aren't being taken up.  Basically, if you are not in it, you have no chance of winning anything and resorting to the blame game isn't an answer either.

In essence, and being pessimistic, I DON'T believe society will adapt to any of us the way deaf want it, not even via law-making unless we are prepared to meet them more than half-way, it's a hearing and able-bodied world we need into, and much more our need, than their need to our world.  So the onus as ever is on us.  I'm just being realistic and I am sure most can appreciate you only get back what you give.  Nothing is for nothing, not even a right.  It has to be earned and adaptable.

You don't just insist and campaign 24/7 and expect people must comply and you don't have to do anything, it takes two to tango its human nature, ergo, what is in it for me?  Like yourself my education was at the start good I was a first in class, then on going deaf came last in 6 months, THEN it started going downhill.  My teacher said I will be lucky to be able to write my own name as an adult.  I think I proved him wrong there, but it took considerable stress, many years, and no support to get there.

I suppose the sum total of my experiences suggested if I don't do for myself who will? and undertook many battles on my own to get there. There are just 3 options you can take, you DIY, you rely on others, or you pay a real price for that which isn't nice at all. I tend to view deaf who just sit there demanding support and making little effort themselves as hypocritical and worse the peers that encourage the thinking behind it.  

For those with learning difficulties obviously, it is not their 'fault' but the insidious promotion the cure is in BSL doesn't help.    It will be surprising to most, how poor a lot of deaf signers are at BSL, with regards e.g. to the technical and scientific areas/FE etc the signs do not exist so they can be taught effectively IN BSL.  There are few if any BSL academic books as a reference so advancement stalls while they try to develop them.  The BSL dictionary is a fairy tale in most part. I was there when it was first developed and there were huge issues of 'on the spot' signing included deaf didn't actually know or use.

Before deaf can advance in their 'choice' of BSL it needs to be a complete and an effective language, it isn't that.  My blog contains many instances where deaf professionals have had to invent own signs for what they are doing.  Culture is about Beethoven (A NON-deaf signing person), and Milan 1880s where it was stated a ban on sign use must happen and an oral approach used instead.  It just gave deaf a cause celeb really.  

But only in the 1960s did it take off go figure.  I stick to my own mantra in that I don't see deaf education based on BSL alone as any advantage for deaf people except socially.  The curriculum angle activists see as their very own 'trojan horse' to immersive BSL tuition of the deaf child.  The government won't agree with that.  Wales rejected it and closed all deaf schools.

It would just create 1,000s of deaf children all needing a BSL interpreter and a social welfare system geared to support it.  Hardly a positive view of deaf people or their language preference, bilingualism and being effective suggest English is their priority as a 'first language'.  They are claiming bilingualism but aren't bilingual.

There may be areas where inclusive education is not possible but that isn't the majority of deaf people.  The argument for special schools tends to be it is necessary for some disabled areas.   I suggest the deaf area is not one of them however.  Indeed the state in introducing inclusion in all schools proceeded to shut most of them down in deaf terms after research showed, the deaf were not advancing in real terms from those of a 9yr old.  Obviously putting all deaf together created their community ethos so a lot want a 'back to the future' approach again. A collective ignorance is not a system the state wanted to support.

The activists are not getting their way, as this can and does, (apart from the government approach to inclusion), means the Deaf would have to challenge the parental choice, and near all are hearing parents not deaf one's, who support inclusion, implants, hearing aids, and wider acceptance which deaf schools were a barrier to.  Any 'success in deaf getting their own way has to challenge the parental legal right, an onus the state says is theirs.  

By far the greatest block on it is the fact that lack of training or resources via teachers, interpreters, dedicated social service provisions,  and a contentious non-agreement on a 'Deaf'  curriculum means it is a real problem to implement what is demanded. At the very best it would lead to a system of deaf children have, and have nots, making it all worse. From what we see it is a very few deaf activists stirring it all up and for reasons that have little to do with advancing inclusion and creating a format and an awareness that is a poor joke at my expense.  

There were quite vicious rows on some deaf sites who turned on parents and called then child abusers. E.G.  'Roxy' an 'Eastender' soap star had a deaf child and went for a cochlear implant she got 100s of hate messages aimed at her by BSL hardliners. Someone even contacted social services and said she was being cruel to her child.

Those who see a bit of sign language as a novelty or a 'right, are not really au fait with the realities behind it all.  Our ultimate aim must be the liberation of deaf and disabled people, their real independence, and not as a novelty or a  tokenism, (which currently is lauded rather strangely by Deaf as 'inclusion').  These deaf want separatism by default, I don't think that is right.  They will be pulled kicking and screaming into inclusion at some point, we can only hope they don't destroy a lot of deaf lives in the process.  

We want out and there is no easy way to do it.  I envy disabled just able to get on with it and without all this cultural aggravation."