Thursday, 14 May 2020

Cabin Fever.

IAN COLE: I didn't know what cabin fever was until Chaplin entered ...I am wondering if anyone criticising sign language or lip-reading,  can be considered to be committing a hate crime?  

Kind of bites into free speech plus if you are deaf yourself surely? it has to be valid comment even if you don't agree with them

I don't think cabin fever has much to do with it, it is just due to lockdown, HoH are only now taking any real interest in the issues hearing loss present along with the various assistive device and communication approaches.  They are isolated more now.  

We were isolated before and there wasn't the opportunity to stop and really think about it, because we are too busy otherwise coping.  

There was a welsh poet who once said "What is this life if, full of care, We have no time to stand and stare?'  Taking stock is necessary if we are to move on properly.

ATR has been heavily involved for YEARS over approaches to hearing loss.  It is all designed to find an approach that works for the most as you can't please all the people all the time.  

The main 'offenders' are US.  We never look at the bigger picture, and so awareness doesn't work at all, we are all 'individuals' no one size fits all etc then nobody agrees with anything, then you have to get a group of people to agree on a way ahead and accept that because there are more of them, regardless if right or wrong for you.

Only the deaf do that, the HoH do nothing if we are honest.  In 30 years I have seen awareness a total failure, not a single HoH 'campaign' has succeeded,  because they haven't launched any!  They got 888 (HoH did that not the deaf), then they stopped.  There were a few half-hearted attempts to print cards and show people with advice on, a loser wasn't it! but still, some are trying to resurrect that again, c'mon for goodness sake!

The last 10 years a whole heap of bias and misleading advice emerged which has isolated us all further the 'no one approach works for all' aspect means we are all on our OWN, time to unite to stop that feeding the isolation as a norm.  Deaf have succeeded with 300 active people that the HoH couldn't with 10m.  Because they acted more or less as a unit, the HoH still think one person alone can swing it.  

We are obviously not doing things the right way or at all, I don't know what the HoH answer is, but I find it refreshing during this lockdown some are starting to smell the coffee.... as for acting on it,  perhaps not, they lack confidence to go for it, the deaf did too, but found by uniting for a common cause they got things profiled.  OK they got this 'language' and 'culture' gig going on, regardless if it is smoke and mirrors, they have gained ground the HoH can only dream about. 

300 activists of the 'Deaf' ilk outdid 10m HoH and their charities?  Whether WHAT they did was right for the awareness of hearing loss, I think the jury is still out!

I posted many years ago on a different platform that the signing deaf received funding because they actually asked for it. I am not an organiser so couldn't set up a HOH group myself and there is the problem of HOH people struggling to communicate with each other whereas the signers don't have that problem to the same extent.

You don't ask you don't get, its pretty basic!  

Currently, the sector is getting millions in funding, for support, their arts/culture etc and they can claim the largest welfare/ESA payments for work in the UK too.  They still plead poverty and discrimination. I don't think it all rings quite true.  

We do know deaf charities have huge financial and Staffing mis-management.  Allegations of bullying, mass resignations of trustees and collapsing of BSL-run care etc.  However BSL IS a money/funding-spinner, and recent AOHL moves seem to suggest they are abandoning the HoH to muscle in those areas now.  

HoH are no longer an area the RNID can maintain any profitability or break-even thing now.  They dumped deaf care because it is far too random and badly run by own people, advice and cultural interferences made it unviable in many respects, these deaf would come out with different demands every other day hardly any realistic.

HoH have considerable means to communicate, they need to start lobbying for more effective means for themselves. 10m can get whatever they need easily. We know face to face is an issue because we cannot lip-read and don't want sign language, so I suggest they pressurise the various technology areas to develop real-time and individual speech to text translation (Because we DON'T want any middle man/woman), relying on others is the sticking point we don't want it.

Or support genetics to determine if we can eradicate genes that cause hearing loss etc.  We have got bogged down in lip-reading/hearing aid effectiveness when we really do not think either address's it.  So addressing WHY we think that, is another avenue.  Of course, that means you challenge the status quo currently.  It's long overdue before we all get sidelined in a mass promotion of sign language and become spectators in our own lives.