Monday, 25 May 2020

Carry on up the deaf club!

The Carry On movies are getting a reboot with two new films in the ...
'Doesn't equality mean Deaf can do as they choose?'

"The view of equality means doing your own thing your own way, but that tends to prevent real equality happening.  It becomes relative not actual. 

I am I suppose, the Don Quixote of the hearing loss area in many respects, but to paraphrase an old Frank Sinatra song 'oops there goes another rubber tree plant.' in that it was a view if you stick to that point and chip away eventually you have to get there in the end and topple that tower at least create a situation whereby debate can actually occur.  Jaw Jaw better than being War War.

I don't see questioning culture or support approaches as an assault on freedom of choice, mostly because I don't believe choice or preference has much to do with it. I don't know anyone who prefers disability. I do read there are people who 'prefer' to be deaf, blind or even wheelchair-bound.  Even a group in the UK and USA who deliberately disabled themselves because they 'envy' the community ethos and closeness the Deaf have.  I did a blog at the time where I infiltrated that group and saw advice on 'how to make yourself deaf by sticking knitting needles in your ear, pouring acid into it, or feigning deafness and being mute and using sign not speech etc to square the circle of how they saw the deaf.

What can we do about it?  deafness or other disabilities are, so just we just get on with it, I do anyway.  Looking at the bigger picture that tends to mean coping/managing your issue means you tend to accept nothing much can be done about or no changes will ever occur etc.

I don't go with that.  Some deaf areas took it a step further declared not being able to hear was a right etc and started to attack others who sought out cochlear implants or hearing aids, promoted oral approaches, or were against alleviating hearing loss, they said it justified attacking other people's 'choice' (Or their parents choice),  by saying it demeaned them and their culture.  

At that point, I thought that's the line you are not allowed to cross.  Nobody can be 'more equal'' than others. You may be entitled to your view no matter how obscure it is, but, you cannot go at other people's.  Do no harm to others.  Obviously, the Deaf can bring in the heavy weaponry then by throwing discrimination claims at you regarding their 'disability' (Despite not accepting that description of their issue), and you are going at their culture by default as they don't see the difference.  They are a minority pretending to be a majority. 

I have rarely seen them able to defend a lot of it outside their own closed areas and social aspect.  Where curiously the image promoted is one of deprivation and discrimination and blaming everyone else for it.  The elephant in the room are the other deaf and those hard of hearing, currently playing lip-service whatever they do, because they can not be bothered to challenge them.  They  run scared of being accused of some discrimination or other, so cest la vie rules and stand well clear seems to be the order of the day.  

I never chose to do that but to challenge the fact promoting isolation as a necessary norm to protect culture e.g. is undermining equality access and integration, not only for others worse off but for themselves. Awareness is done by rote or plain bias, with no real desire to take advantage of any door currently closed, being opened for them.  If it is they can demand where that door leads to and usually, that is back where they started from if it means outsiders coming in.

Of course most deaf have no time at all for the nonsense as managing their daily lives takes higher priority.  I think most is online and done by people who barely rely on sign at all or are able to function in hearing and deaf situations without much issue, but the tail is wagging the dog mainly due to rich pickings from funds if you go about it the right way.  You can become a cultural or deaf expert overnight and charge people to listen to you. 

Recent closures of deaf culture charities and support charities for the deaf has shown such people are wasting huge amounts of disability funding and undermining support for their own too. ELDS saw 130 deaf left with no care cover after the charity was found financially incapable of running deaf support, 70 deaf staff lost their jobs too, the BDA saw ALL their trustees mass resigning and they still run that charity on some feudal based system threatening members with legal action if they disclose how that charity is run or how it should be.  The RNID/AOHL sold off their deaf care too and assistive device market lets all campaign instead, they been there done that and look at what happened.

It suggests to me the emphatic over-focus on the cultural/sign aspect overrode common sense, divided people by mode used, and created neglect of duty and care to the deaf.  I complained to my MP that culture should not be recognised as a charity at all also that any area setting up a charity has to provide proof of a capability to run it and for a cause that is recognisable and not being met anywhere else already.  

You and I know the CC is a government arm in reality and they are quite happy to let disabled, deaf, whatever, screw it all up for themselves, blame then doesn't go their way.  I suppose I want support charities that try to emulate a system the government and health authorities abandoned years ago should be closed, and state care returned again.  It is a simple admittance we made a mess of it ourselves and it has allowed care to deteriorate not improve.  Deaf and HoH charities blew it.  Let's get back to a system that sticks to the rules and is there all the time and is accountable which charity does not seem to be.  

To avoid being exposed, some charities are becoming Limited 'Companies', charity was never designed to do that surely?  They no longer are charities once they do that and challenge the status quo by being tax-exempt which other legitimate companies are not who are delivering same services.

The equality laws are now unviable.  Having been at the launch of the original back in the 90s we knew then the acceptance of the '90s Disability Act was a sell-out. We wanted to stick to our guns, our charities wanted the funding and saw a way to cash in, so we lost.  All I am seeing now are re-runs of issues the Act was supposed to have addressed.  the state divided the disabled and the amateurs moved in to screw it all up.  Thus proving we can make as much of a mess as anyone else can."