No more PIP reassessments for people with Lifelong disability or conditions? What was posted online:
"When a disabled person has a lifelong disability, or condition that will not change and will not diminish, they should not have to go through Light Touch Reviews at 10 years. If someone cannot self-advocate, they can be taken advantage of and can be manipulated. Medical Consultants give enough evidence through their reports that 10 year Light Touch Reviews, or indeed ANY reviews shouldn't be necessary.
Our daughter Holly is Certified Sight Impaired, On the DeafBlind Register, cannot use phones or fill in forms, yet we are still being told she will need a Light Touch Review at the 10-year mark, HOW? Unfortunately, we've already had an horrific PIP assessment when she turned 16 that we do not want to be repeated."
ATR response: As stated it isn't a declaration of accepting that deafness or blindness is for life by the DWP but a petition to hopefully do that. However, validation is still an issue, as is defining deafness because grassroots are at odds with definitions. Whether the DWP will then accept it as a lifelong reason for a disability allowance isn't so clear, the validity of financial support is defined on the ability to manage your issue.
I'm wondering if the increasing use of technology and such as well as relentless campaigns against being labeled AS disabled are undermining the support we need with our deafness? Deaf are campaigning on the grounds of culture/language, so maybe the DWP is taking them at their claims and so not validating deafness and hearing loss support as a result? be careful what you ask for perhaps? Recent 'new' video access to the DWP could well be used to suggest deaf don't need financial support as they already get free BSL support, the highest disability rate of Access to work help in the UK, reduced entrance fees to public areas, and free public transport on buses etc.
It's become an increasing 'problem' determining a lack of help is there or, support. Whilst hearing with issues can claim help to facilitate social deprivation issues, the deaf can't, mostly because the 'Deaf' have own social setups and given any choice would stick with that. Human rights are being used in cultural terms not disabled terms. The DWP allowances cover issues of disability in regards to hearing loss. LOSS is a prime factor as well as the ability to cope with it, Deaf are blaming lack of access, not lack of ability.
Nothing is for life at the DWP and can be reviewed at ANY time. The only certainties in life are taxes and death.
Yes, we are deaf for life but if we claim deafness is NOT the problem we can expect that to have an effect, it then becomes a rights issue outside the remit of the DWP being political. When I first applied for an allowance they said being deaf was not an 'excuse', it took 6 attempts and 3 YEARS before I got the old DLA now that is gone again. I am profoundly deaf in both ears and have been for 50 YEARS. When I got DLA the DSS (as it was then), kept asking me when my hearing was coming back. I said never, they kept asking.