Sunday, 31 January 2021
Saturday, 30 January 2021
Deaf and HoH people need a proper course of loss awareness, we tend to get sucked in with courses/levels/etc and the overall hype of sign communication approaches, but we can get bogged down in own perceptions and own experience and assume others are the same which isn't true of course, everyone is different, in loss degree, ability, lifestyle, age acquired, communication approaches used, etc. When that is understood then the directions of awareness and support tend to shrink and become singular and that divides people.
Currently, awareness which is a bit of an 'in-joke' with most of us, because it is singular and polarised so awareness is entirely relative to who is promoting it. We tend to feel sorry for hearing people wanting to be aware, who then don't get it when faced with those who they weren't told about, or were misled on what others need, or, who they are, they get defined/labelled by how they communicate not how much loss they have, or how needs differ. Loss and its real effect then become a secondary issue. They don't understand the D/d or HoH thing or the 100s of others in-between because the course and classwork were singular or specialised.
The first thing all need is clinical assessment, then a course on restoring confidence based on understanding hearing loss reality. Basically, sign language it is not as simple as acquiring the skill, it was designed for people that had no hearing background, and if you did there are issues adapting. Sign demands an alternative lifestyle approach, and this is where HoH fall down, there is always the reluctance to go in that direction, or they can struggle to find an area to use it in, few are told the use of sign exclusively means your reliance on others in a class because they know many would not proceed with learning it. HoH have a real 'thing' about having to rely on others, this is never really addressed.
We need to really understand what sign communication is and IF we are prepared to adapt to maximise its use. It's a 'novelty' in some classes, but a way of life to others. Most classes consist of hearing people wanting to work 'in the field' or relatives, you won't find any deaf there much as with lip-reading you won't find any there either. We think the whole BSL/LR thing fails to empower actual deaf or HoH and simply not designed for that, which begs the question where is the actual communication help? and preferably one without the insane politics and cash-driven basis of it all?
Awareness relies on who promotes it, or polarised charities whose primary function is to maintain our reliance on their 'support', all based on culture or politics, not need. Disability has been dumped in favour of blaming others for your situation, and we are all social animals not patients with a sensory loss, so who needs support? We need everyone to adapt to us because we cannot adapt to them etc. Maintaining specialisation has simply empowered minority areas, not empowered the major one, who had their issues relegated to minor status as a result, creating a sort of hierarchy and elite amidst those with deafness. The reality is deaf haven't moved at all and no longer feel they should anyway.
Sensory loss is a huge disability, it's not only a sensory/communication issue but one of mental health too, and we should be treating those who are disabled by it with the higher level of seriousness it needs. At present we are simply empowering others at the cost of sacrificing our own empowerment. That isn't the way to address things. Technology has given an opt-out in part from addressing these issues, so everything is becoming realtive. Who knows what the future actually is in assisting those with hearing loss?
Friday, 29 January 2021
Is your relay call really necessary? A short review of online deaf Hard of Hearing responses...
#1 I thought relay systems were obsolete? as we can text, email etc most people now, indeed they prefer that method. I have easy access to my GP this way and the NHS, also to 999, I am not comfortable with video access because sign relay is nil use to me.
#2 I gather there isn't a great take-up of it by the deaf either?
#3 A LOT of deaf sign users don't phone or text anyone outside their peer area leaving it to hearing relatives, or interpreters most are on first names with. One statistic suggested less than 34% actually use dedicated access lines or make their own calls to them.
#4 Sign Relay claims a lot do use them but when I asked for a breakdown of the stats they refused me them. E.G. One deaf person using the relay system 6 times, is NOT 6 deaf people using the system, It suggested 'creative' statistics, but all these deaf charities make up their own statistics.
#5 It is a deafie job-creation scheme for themselves innit, like cultural advocates, deaf awareness, deaf arts, and BSL trainers... money for old rope they know hearing haven't a clue.
#6 There was a campaign to stop family assisting deaf people wasn't there? because it was killing access campaigns and demand other deaf were campaigning for, seriously hampering neutral support, and confusing inclusion demands. One deaf area at odds with the other.
#7 Yeah I saw that the BDA and RNID challenged the campaign as an 'attack on choice'. The campaign also lobbied NHS insurance companies on the grounds if a family assist, created health issues for their deaf relative, then the NHS could be sued for non-provision of neutral support. Hearing relatives were known to withhold health details. Justified on the grounds their deaf relatives wouldn't understand them.
#8 Yeah cushty if the deafie is making a will, or needs banking help lol.
#9 Haha, attack on the BDA/RNID/SIGN HEALTH money-making scheme more like it. Suggesting poor access as a drive for more demand for their help, more help means more reliance means more help etc... a charity perpetuation scheme.
#10 It was pointed out every time a hearing relative was used, deaf were not getting neutral advice or help, and relatives were making decisions for them, which was the campaign's primary point, but it seems a lot of deaf are more than happy to let relatives take the decisions for them, even using underage hearing children, which is, in fact, illegal in the NHS and social services could get involved.
#11 Can you actually imagine a deaf person attending an STI clinic with their family, an unwanted pregnancy, or a vasectomy e.g? There has to be a limit on how much anyone deaf or hearing would want their family there making those decisions or calls, or knowing about them, doesn't the Hippocratic Oath matter any more?
#12 Nope, although the deaf patient should be asked to sign a form exonerating the NHS if a hearing relative fouls up.
#13 This should apply to Interpreters, but. a legal case said there is no blame can be attached to an interpreter who gives wrong or poor advice, or has misunderstood themselves what a medico was saying, or misunderstood the level of understanding of their deaf client, by default it becomes 'hearsay' so not admissible as evidence. When a deaf person uses 'support' they accept that, even in dealing with social service systems. The deaf has to accept that by using an interpreter they are happy with what is relayed to them. Ditto the interpreters, they cannot be held responsible for the fact deaf haven't understood clearly, because there is no way to determine how much detail they can follow.
#14 Interpreters mostly do not have any specialisation in health matters at all, e.g. a level 4 qualification is NOT a qualification in health matters, which requires specialist training over and above 'he said she said'. Level 4 BSL interpreters were used in a mental health deaf clinic in England and were cited as unqualified to be doing that job as they had no experience in mental health, which eventually resulted in deaf patients being abused. The assumption was a qualified BSL interpreter or assistant is qualified in every area.
#15 This isn't for a lip-speaker, where specialisation has to be undertaken before they can work in specific areas e.g. courts, it is concerning sign support demand little or no specialisation.
Thursday, 28 January 2021
Tuesday, 26 January 2021
Canada needs to do what the UK is doing and close down 'specialist' deaf schools that operate in isolation from mainstream, and thus are unregulated and unmonitored. Research taught us in the UK less than 15% of ALL deaf children require a school with specialisation and with adequate support can manage mainstream ( I emphasise adequate because someone inexperienced taking a few notes and an ABC of sign won't cut it).
The UK also showed that inclusion of deaf children won't happen if they are educated apart from the mainstream, not even as adults since the 'die is cast', after that time. Large areas of the UK no longer have any deaf schools, one area (Wales), has none at all and statistics do not appear to show deaf children there have suffered as any result as academic attainment has risen, where previously, deaf schools stagnated, and as Canada saw, children, suffering ignorance and abuse.
Many myths abound of deaf adults extolling the virtue of deaf schools, primarily because they formed a self-reliance social set up in those places to combat the abuses and isolation, but they don't support the educational side of deaf schools, which left them as adults unable to compete with hearing for work, health or enabled any realistic inclusion via empowerment.
In Ireland, the church abused deaf children and in Scotland too, one deaf school very recently there was investigated. The issue is abuse is passed off as 'misunderstandings' by the deaf via their 'learning difficulties' it is how abusers kept up their abuses so long, nobody believed the deaf child.
Unfortunately, as deaf schools continue to function, activism exploits that fact and holds up deaf schools as a model to return deaf children to, because it is the basis of their culture and social lives, ignoring the fact abuse is what drove deaf to do that at the start. Schools were deliberately set apart from others. Deaf children saw exclusion as a norm. Deaf groups and leaders show few skills or reliability to ensure child safety and already promote separatism as a justification for the deaf to stand apart, aided and abetted by a poor system of deaf child support in the mainstream.
Most of the drive is activism knowing deaf community starts in deaf schools and want that maintained even reinforced, putting abuse and ignorance as a price worth paying. What will overtake deaf activists will be choice, even they can not stop that happening. School days are the happiest days of deaf lives? so many were in complete denial, so many lies from older adult deaf who still justify it.
It's good these issues are raised, but unless they address why they happened.... compensation won't stop it.
I've had years as a Hearing, Hard of hearing, a severely deaf person, and now as profoundly deaf one, and a dozen other identities in between since I was 11, so have managed to form some views on it, which I would like to pass on to you for a very small fee and can supply you with a cuddly toy with a hearing aid on it, or a deaf ABC if you are that way inclined, as well as regular updates as to how I will spend the cash you send. I ask only you read these sad tales of woe, discrimination, hearing persecution, deaf genocide, and more identity issues than most schizophrenics can ever hope for... because you have to inject some issues or they think you are taking the proverbial. It's a personal experience, and I trust no-one else has to go the same road, so please pay attention, as I will be passing the hat around later...
I write as I recall, and leave you the reader to assess as they find. It is a waste of time the sign user taking an interest they banned inclusion, speech, or reading years ago, so I can write or say what I like really they won't know unless they break ranks and trip themselves up by letting on that was all bull manure. It's a voyage of real discovery and derring-do (And a few derring-don'ts it has to be said), into the thoughts and mind of an individual with hearing loss, who lives, laughs (Mostly hysterics), and loves life (Just not the deaf one), whilst still avoiding rubber wallpaper, going to deaf clubs, and telling everyone it's half-past two.
We all of us with hearing loss, have to go through the agonies of poor awareness, lack of focused support, and enduring discrimination from society, and from other deaf people, at our schools, at the workplace, and suffer the slings and arrows of outrageous uniformed and patronising Support Systems in it for the cash, as a bonus. Whinging is what we care about most.
If you add that as those losing hearing, or lost it down the side of the chair somewhere, we spend the first dozen years in complete denial as well pretending we can still hear and nodding our heads off like Indian coolie's, that about describes it for most. Hell, even my cat took the p.i.s.s. out of me...
Anyone who thinks it's rough today support-wise, obviously don't get out much, or are members of this mythical community with their own version of dodgy handshakes and face distortion. I expect they are probably on holiday at this time in the Seychelles spending their hard-earned disability handouts, or perusing which 4 X 4 new roadster they will drive this year. We can claim 5 times any wage just to turn up for work. We've made millionaires of some BSL interpreters.
I opted for deaf arts initially, because nobody has a clue what that is and you can do what you want, all you need are hands and learn how complain with them without hitting anyone. I got a grant of £9,000 last year to set up a charity to explore issues deaf people have with hearing, money for old rope really. Basically, I tell people I can't hear them, and you get a decent laptop.
It occurred to me that many cultural deaf people e.g. feel the need to write about themselves and issues, about how life in an institution (Sorry deaf school), located in the middle of some obscure field, with only sheep for company, being abused, or learning how to work for themselves because no-one else would hire them, while being unable to make themselves understood with sign language, was the best time of their lives etc. They tend to curse their parents for being hearing and made paranoia an Olympic event.
It's life, just not as most know it possibly. I'm a prime example of one db too far (Or not far enough). I thought there is a few quid to be made, and some reference to Mr Pulitzer on the cards, and if moaning at all and sundry gets me a living and recognition, (Or hard cash) hey, don't knock it.
Initially, I did try an American spell checker to write this opus, but it ran out of vowels or something. I tried a European one they didn't have anything but consonants but did do wonders for my football skills. I even tried a welsh language approach but the pages got soaked and were unreadable. I couldn't find 'll' 'ch' or 'ff' keys on my keyboard.
I thought it might make a change to you dear reader, to read about the trials and tribulations of a deaf person who doesn't put it all into a cultural context, and rambles on about what happened to people like me 200 years ago in Italy and long before the UK had ever heard of pasta. I often 'take the knee' for deaf inclusion, (It's getting up after, I have issues with).
If this book/paper/blog, incoherent ramble, and passable alternative to war and peace, minus the cannons, is an aid to awareness in any way at all, gets up people's noses, or even triggers debate about it, and instigates a drunken punch up, I'm happy, just send me money, I have all the sympathy and issues I need thanks.
If it raises awareness and creates inclusion, then we can all enjoy the same issues hearing have, sod's law innit... The point being you should not link my story with anything concerned with a capitalised D, or small d (As this invites some form of childish ridicule for some reason), it's what you do with it, that counts as we all know.
NOTE: The tome' does not by its nature endorse anything to do with oral versus deaf, Deaf versus sign language, Social versus Cultural definitions, D versus d, or deafness versus disability. These people keep adding to it, so by the time you read this, they have declared war on Neptune as well I expect. Please understand they have a desperate need to keep re-inventing the wheel. My view is they are all whingers, so why not me? Equality in Action.
I think us poor sods and sod-esses with hearing loss, have been neglected too long by all. I'm now an old fart, so beyond worrying about criticism, so up yours, vote 'Deaf prime Minster now', 'Deafness for deaf people only', and give us loadsa welfare money, you know it makes sense to fund us to go live in the Bahamas somewhere and stop annoying you for a job, support, or inclusion.
GOOD NIGHT UK!
Monday, 25 January 2021
#1 It's the hearing world that needs to be more inclusive, but it depends on government policies, government goodwill and the hearing society willingness too. The poliglotic approach could be an option, Prince Philip's mother (Her Majesty's mother-in-law) was deaf and learned many languages, but in a flying world a wingless bird being said that it must fly to survive is impractical, society through government must do it's part for it to thrive. It could be harder, I know, but acceptance by actions would go beyond and succeed. Teaching written English to deaf people as deaf not as if they were hearing people may help a lot. The hearing world, English speaking and writing included, needs to reinvent education so to really include the deaf world.
ATR: Everyone should sign to the deaf? That wouldn't help me who is deaf and doesn't sign or 6m others who don't would it. Deaf sign users who keep insisting education is a form of discrimination, need to look at the world as it is and not from an enclosed space that confines people to ignorance. They aren't the only deaf people in the world, and most now do understand acquiring their country's language is essential, it's not a discrimination process! Illiteracy impoverishes the deaf signer as much as the hearing peer.
I think dragging up Prince Phillip's mother is stretching credibility a bit too far, he is near a 100 years old now, and, he ridiculed deaf people at an event he attended! FYI His mother was a lip-reader who lip-read English and German but didn't sign, she was also a schizophrenic. The only 'royal' who had a stab at sign was princess Diana, another schizophrenic and a depressive who never got beyond spelling her own name with it.
Teaching English isn't a choice option, it's a necessity for deaf people to advance, I don't see where speech comes into it, for those with no ability to speak nobody is forcing them to learn. There is no written sign language and everything is visual, so no signed reference work deaf people can use. ATR published last year a deaf scientist having to invent his own sign, but without a reference work to understand those, again extreme difficulty for other deaf to do the same as he did. He was taught orally...
The sign language does not exist for the deaf to advance in education or science to highly advanced levels, without an understanding of English the textbooks are meaningless and there are no signed ones. Not only are you suggesting some sort of immersive and total signed approach for deaf people that has nothing but a disputed dictionary and no technical reference, but no teachers or system to make it viable. If you started now we are talking many years assuming the visual textbooks are being developed.
Opposition to the only means they have of learning to read this. Mainstream won't adapt to you, OK you will get an interpreter to maintain your reliance on hearing but.... because systems know sign is an incomplete language they can use for teaching, and they would need to know mainstream will accommodate that. I think deaf need to use their heads more and their hearts less, or remain left out. Unless they really want to spend their lives as some sort of Don Quixote tilting at windmills...
Friday, 22 January 2021
Thursday, 21 January 2021
[A view from behind the UK barricade]
After watching what was a ridiculous inauguration of a senile (But nice) old bloke in Washington who brought the church and circus into town, a trans singer dressed like coco the clown, which was followed by an outbreak of silly grins, while the populace were banned from attending (because that is taking democracy too far), and instead were represented by a shed load of flags instead, he endorsed 20,000 armed to the teeth troops wandering around hoping to shoot a few protestors, I think America has lost its Union frankly, and I'm half inclined to throw in my Lot with Vlad the Putin or that Chinese XPing or something.
Sleepy Joe Biden (They are taking bets he won't last 18 months without stimulants already), then commenced allowing an illegal migrant-free for all (Texans will love that I'm sure, 6m illegals just aren't enough apparently), then he encouraged more Islamics to come (Because Trump stopped them coming citing that the USA has more crazies than it needs already). Obviously, Joe disagrees, democracy demands ALL crazies are welcome (And he can supply them with AK 47's and semtex at very reasonable prices).
His number two (No pun intended), was chosen via some lucky dip of names sent in by Jeremy Corbyn of the UK who is never short of stupid ideas and needed a job in between campaigning for Gay Whales, and London for the Ethnics only. They did have reserves of his including Lassie, and champion the wonder horse on account they carked it some years ago, and used for wood glue, but news travels slowly in Corbyn's UK.
The populace were banned from attending because they wanted to turn the Senate into something useful like a home for the down and out dossers, this was deemed an assault on democracy, you need a job and a few million dollars to sleep in the senate. People were represented by flags instead, (Arnold Finkle of Kansas is represented by the 8th flag 28th row, to the right near that lake, Hi Arnie!).
Boris in London has done a 180 degree and now insists Mr Trump was a bit, you know, OTT about things. Biden is bad news for Boris because he supports the IRA, and the EU, he was told the Irish were already in the EU and had suffered enough. Biden now wants to save the environment and to start putting troops on Russia's borders again, Detroit will lose jobs but... perhaps he will send a few jobless to NATO. Easy money, just turn up, vote nyet, and collect the wages, easy peasy. They will have to queue behind the unemployed European Union members from the UK 'though.
Nigel Farage will be sent back to the UK because Mr Trump has taken up golf again and Nige plans to launch a 'Let's boycott America', campaign, and 'put Joe in a rest home with the other vegetables.' Sources suggest this is yet another winner. Missus Trump did hire a circus tend to wear for the day which was quite colourful and looking forward to raiding the shops again. The consensus is Don timed his arrival in Miami to perfection so 2-0 to Don, leaving Biden looking a bit lost.
Joe has decided to start recognising Europe again (a mistake in our view but..), and is hoping his chickens dipped in domestos bleach will prove a real winner in Berlin or Paris, or even Krakow if he can find it because they have less taste than the British. 'A much better use for bleach then injecting it to stop covid,' he said, 'which didn't work as we hoped, I think it a winner personally..'. 'Any country that can wear silly leather shorts and stuff Saurkraut down their throat 24/7 isn't going to be fussy,' he said 'Or a country that shoots and eats swallows and eats snails.. bleached chicken in cow s.h.i.t. are surefire winners..'
Joe has decided to re-join the WHO set up so he can blame them for all the inactivity and USA balls ups over covid. Biden, also signed 15 reversal papers, (back to the future V or something and conclusive proof he CAN write), also adopted new changes to gender rights, religious, and sexual orientation rights and access, and other concerns, Trump said were just plain ridiculous, (So your guess is as good as mine as to who, or rather what gets legalised next). The good news is newt worship is now a legal right again.
About the only positive of the new ethnic rep at number two, is you are guaranteed a decent curry when you visit. In reality, she is so far left she meets herself half the time walking about and is losing the use of her right limb. 'Anyone can do and be anything in America..I'm an example!' She says, but 'isn't that the whole problem?'
Wednesday, 20 January 2021
"We need deaf schools based on sign language as the prime teaching medium..."
More arguments about switching to an immersive approach to a sign based education for deaf children and claims this is a basic need being denied. Should not inclusion be a priority? This cannot be done by legislation alone.
This is nature versus nurture, nothing is written (Or signed until we do that).
The thing about education is too much politics and not enough determination to offer deaf children a means of surviving and managing mainstream, cocooned as they are in specialist surroundings and a 'community' their sole alternative socially, means more of the same and nothing will change.
Rather a pessimistic viewpoint! The deaf community is all the deaf signer has, and it's their choice, not for you to say no...
'All they have and their choice..'? Can you not see the irony behind your own statement? They don't HAVE choices and that's the issue.
Inclusion in the mainstream means they need options to sign language it is a simple as that, I know this annoys certain areas, and they can yell discrimination till the cows come home but they need true bilingualism and alteratives to sign because it isn't what mainstream uses. You cannot demand they learn yours. At best you can go half-way and hope others do the same. Once you accept mainstream is not going to comply with demands then solutions become more realistic.
Pessimistically, showing deaf children that their future is one of reliance on others for life, a right even, and hearing are 'against' them, isn't much of an impetus to adapt at all.
It's a base to launch deaf activism from, to blame everyone else, a base for a multitude of disassociated and disenfranchised people and focus groups to rant endlessly about, a breeding ground for extremes.
Deaf activism struggles in its own vacuum, it has turned deaf culture into a blame culture. There are no BSL schools, no BSL Deaf teachers, not enough interpreters, and no BSL curriculum to make it work. Political deaf views on opposition to our basic language acquirement, do them no favours either. It would take years to set a BSL system up and no guarantee parents would buy into or support it. Who would train the BSL educational teachers up? and what bottom line on inclusion is there? Or would it be 'cultural indoctrination on the 'Deaf Way' and children watching as endless campaigns come for others to sign too? Where awareness is selective?
Mainstreaming must succeed we owe the deaf child that. Every child matters indeed, but they need choice and the Deaf community offers no choice at all, we have to convince people Isolation isn't inevitable, or what hope is there? Let us not bury realism beneath a layer of special need already hijacked by deaf activism whose bottom line is ignorance.
They need numbers to make waves, and there are less deaf now than there were, better approaches to hearing loss, CI's are better, Hearing aids are, and genetic advance will also address what wasn't addressable before.
Sign language is seductive, the idea that sign was a way in to other areas is never the reality, because once they sign at each other 24/7 what impetus is there to communicate any other way? We need to prioritise bilingualism day one and actively ensure hearing and deaf peers work together, not, taught apart.
Of course, oral tuition started off very badly, but today we can make it work a lot easier and should be doing. We need to bury deaf activists who call it cruelty, and intent on keeping deaf where they are, isolated so they can pontificate at them.
I find this conversation interesting as a look back to ye olde deaf ways, as they don't exist anymore, nobody wants it, and young deaf are getting out there and away from the restrictive lifestyles older deaf had no choice but to go with, let's be positive and make inclusion a reality, not another barrier created to keep the deaf out of it. Deaf schools and clubs were a necessity in days gone past, they aren't now.
We need to prioritise ABILITY, not laud DISABILITY, simples.
Tuesday, 19 January 2021
Friday, 15 January 2021
Thursday, 14 January 2021
Wednesday, 13 January 2021
I know it might sound silly, but i don't know anything about hearing loss etc, so now there have said I've got mild-moderate hearing loss does this get classed has partiality deaf??? , I'm really sorry if it's a daft question
To be or not to be seen, appears to be your question. I don't envy the poster wondering what on earth his 'classification' is, just pick 'n mix your own, where a silly hat, it really doesn't matter, it won't address your loss of hearing. Searching for an ID suggests you have other issues, not just hearing loss. Perhaps get that seen to first? Not everyone needs to be social 24/7.
All is absolute confusion and awareness whatever you make it. There used to be a quite simple identification of hearing loss, if you CAN hear ANYTHING [with or without alleviation], then, you are NOT deaf, if you CANNOT hear anything at all with or without alleviation then you were deaf simples.
Didn't the DWP make a legal challenge to 'deaf' people who took their aids out and stated they were deaf, as attempting to gain welfare and concession support by fraud? insurance companies did too. Look at the problems of mask-wearing today and nobody believing you have a valid excuse.
Deaf were refused ID cards that identified them because nobody clarified what deaf meant, and the Deaf themselves felt it ID's them as disabled, then rights entered the fray and all was clear as mud because a lot of Deaf had some useful hearing, but changed the debate to lack of inclusion.
The issue is not what they can or cannot hear but if what they do hear can be effectively followed, however, the DWP said that 'moves outside clinical loss', because not everyone follows everything the same way hearing or not. This led to legal challenges where deaf lip-readers were also said to not be deaf at all by the DWP AND by BSL deaf areas too, who said that lip-reading and speech, was a clear indication you were not deaf. It descended into rank silliness.
The arguments seem to go on and on and on about it. 'Quality of life' entered the arena, but nobody could quantify it. Quality of deaf life revolves not on lack of inclusion but on ensuring their lifestyles are protected, that lifestyle seems EXclusive not INclusive.. Access is still primarily via 3rd parties so social inclusion is relative.
BSL people have it easy! 'I sign therefore I am obviously deaf', and the system accepts that, but, a number of them we would identify as severely hard of hearing, NOT profound deaf because 'profound' means total/extreme, it is an absolute, and their loss isn't. The HoH version tends to be shrugged off as 'hear when we want to..' because hearing loss varies considerably, and because those with it are unsure what they are supposed to able to hear.
Hearing loss isn't subject only to ears failing. It can be nerve induced, a mental health issue etc, it is incorrect to put it own to hearing loss alone.
Goalposts shifted, they were a culture, debate erased.
For them! I think personally HoH rolled over far too quickly in accepting that point which effectively shut them out and replaced any voice they had.
That's their problem, they need to speak up for themselves.
BSL is a visible disability, hearing loss isn't. In obtaining help and support it pays to take up sign language clearly, but is that fraud? Given it is not aligned with deaf culture or that area at all?
Who cares? Desperate people will take desperate means to get help. If you are struggling, all's fair.
Tuesday, 12 January 2021
The annual, worldwide search from leading provider and inventor of hearing implant systems, MED-EL, invites youngsters to create their very own design which will improve the quality of life of those who suffer from hearing loss. Entries can be sent via a video, drawing, or sculpture, but the most important factor is for young people to think big and channel their ideas to support those who cannot hear.
Due to the COVID-19 situation worldwide, the ideas4ears contest for 2021 is focusing on children and adults who are currently home-schooling. The contest is a great opportunity to participate in a fun and educational activity the whole family can do together while at home.
The brains behind the ideas4ears contest and the Head Judge of the inventions is Geoffrey Ball. Geoffrey became deaf as a toddler and then went on to invent a revolutionary middle ear implant to treat his own hearing loss. As of today, Geoffrey has over 100 patents to his name.
Ball said: “Children should see their deafness as their superpower! Being deaf as a kid gives you many powers; the ability to have empathy for others, to become adaptable, and to find creative solutions to everyday problems when you live in an environment that is not set up for those with hearing loss. The challenge is ending this week and I can’t wait to see the ingenuity of the inventors this year!”
Monday, 11 January 2021
It is interesting there are areas of deaf people that will include non 'Deaf' online, but, online is not face to face, and you still aren't living their lives. If you are using text as a means you aren't using their preferred communication either. The problem is zero advice or support for those with serious hearing loss on what expectations they can go for and what ability they have to make it work. Going deaf is the start, there are lots more hurdles to overcome, and, adopting more limitations, alternative social norms, you don't expect deaf culture and lifestyle will impose on you, nothing is for free, and most are still battling with trauma. Learning sign language and attending a deaf club alone won't provide those alternatives since, they are a way of life, not an area you can just pick and choose from.
Pessimistically only 5% of those with hearing loss ever manage to adopt a 'Deaf' lifestyle. The answer is simple they don't want a deaf life, they may just prefer social parts of it. It's far from clear 'Deaf' want to be included, and prefer to stay like with like, their battles aren't about inclusion, but about the right NOT to change and to get more support to stay that way. They also oppose educational things those with hearing loss consider their norm, so conflict is going to be there. Topics like non-sign use or deaf cures won't help you either. The naivete of HoH who think they can switch from a hearing to a deaf life with few issues is why they fail to it.
#1 People have different ways of being deaf in the world—whether it be deaf people, people who are hard of hearing, or cochlear implant users. In the spectrum, I lie between deafness and hearing, someone psychologist Neil Stephen Glickman considers “culturally marginal deaf.” These choices aren’t mine but the result of my circumstances and decisions made by my mother who has dictated most parts of my early life. She chose the path for me to regain sound moderately and to live with a cochlear implant.
Unfortunately, my implant doesn’t ameliorate my hearing completely or reconcile me with my peers. It pulls me back from the deaf culture without really allowing me to enter the hearing world. It is a Janus-faced kind of existence, as I try to find balance in both worlds. And since I live with predominantly hearing peers, complexities arise and social adjustment is hard when I try to join the deaf community. I feel very lost and benighted.
There are deaf people who have a realistic understanding of both cultures. They develop a bicultural identity. There are also deaf people whose first language is sign language, securing their sense of belonging in the culture. I am neither and it feels like I’m eclipsed away from both worlds. When cochlear implants were newly invented, many believed they could magically restore hearing. After discussions with physicians and audiologists, many hearing parents were convinced that this was the answer to their child’s hearing loss.
There are early birds and late adopters. I was an early bird, making me new to the deaf culture and engaged in the hearing world. Late adopters are more immersed in deaf culture since they got their cochlear implant late. We are also often coerced into speech therapy, forced to learn a culture and ideal that are not ours. Think of it as “colonialism” from the vantage point of the deaf. The deaf community sees this as a threat and a struggle for acceptance and recognition. Being able to hear at the age of 3 developed my initial speech. I remember my mother telling me how “lucky” I was that I wasn’t like the other children.
This hegemonic notion allowed me to be lulled by a sense of complacency. It created ignorance toward the deaf community, causing me to be shunned from the community.
#2 I lovingly refer to my cochlear implant as Cleo. Outside my house, I would have her by my side round-the-clock. But at home, it was exactly the opposite. I would ditch her, making my auditory perception progressively worse. People I interacted with lost their patience, misunderstanding my “huh?” as trolling or an ironic response. Eventually, I stopped asking “huh?” and just pretended like I heard them. This caused me to feel like I was dissipating or drifting away from the world.
This somehow affected my speech development and further retracted me from deaf culture because my life was fixated on the hearing world. Sound was the only thing keeping me away from oblivion and connecting myself with the world. However, owning a cochlear implant doesn’t help me understand words distinctly—which in the past had helped me become the class clown.
The many painful and hurtful encounters I’ve experienced taught me to let others normalize this perpetual kind of oppression because my ignorance and complacency made me lazily accept things like being shouted at, being misinterpreted and misunderstood. When I first joined the deaf community on the chat app Discord, I sensed hostility from my deaf peers. I had no prior experiences with them nor was I heavily influenced by or exposed to their culture. I hardly knew sign language.
Joining the community
I joined a social gathering on Zoom arranged by one of the admins combating oralism to reinvigorating sign language. I felt useless because I, along with one of the hearing individuals, disrupted sign language communications. But that didn’t anger anybody. They typed as a way of communicating, bringing hearing and deaf peers together.
Everyone had to introduce themselves. When it was my turn, I gave a short introduction about myself and the reason I joined the community. I talked about how rarely mainstream deaf culture is in the Philippines. We all shared feelings on an intellectual level, that degree of loneliness because we all live in a predominantly hearing world. I asked: “What’s the purpose of the call?” Pika, the owner of the server, replied with a simple yet firm answer: “To sign words.” The purpose of the call was communication and to make the participants feel less excluded.
Zoom calls were held every Sunday. During my second time to join, the participants were predominantly deaf people and people hard of hearing. They signed seamlessly. I couldn’t join them or catch what they were saying, reminding me of the unique combination of exclusion I continue to face. In the deaf world, I don’t know sign language, and in the hearing world, I can’t discriminate syllables and organize words, I only hear sounds.
Sunday, 10 January 2021
Saturday, 9 January 2021
A software engineer has recruited a team of dedicated volunteers to create and maintain a retro version of the classic teletext information service Ceefax. Peter Kwan has spent years perfecting his own system, which he has called Teefax, after Ceefax was shut down in 2012 after nearly four decades of service. Available to anyone with an internet connection, Teefax is formatted in the same style of the old teletext system and sources its news directly from the BBC. The service has pages of classic Ceefax-like content as well as an archive of old teletext pages. It also features pages displaying Tweets among its pages of up-to-date news.
Teefax can be viewed through online servers but with a Raspberry Pi – a small, credit-card sized computer device that costs around £25 – the service can be connected to and viewed through a TV. Mr Kwan, from Stroud in Gloucestershire, said users find his Teefax system “nostalgic”. “It’s got all the original stuff like horoscopes, weather pages, travel,” the 63-year-old said. “People can mostly find whatever their favourite page was on Ceefax. Usually they’ll have the page number still memorised.
“We’ve got a couple of quizzes and games, too, although at the moment they don’t get updated very often, so people might have to wait a while for new ones to come up.” Mr Kwan has now been running Teefax for about five years – and has dozens of contributors working on it from around the country. “We don’t make any money from this – it is all run by enthusiasts. It’s not something we take too seriously,” he said.
“There are about a dozen contributors around the country, who all concentrate on their own bits. “We have a chap in Ireland who provides regional news and weather, and we have people who do art. “We also have quite a few gamers from Digitiser magazine who contribute – the magazine has a fanatical following and was quite closely related to Ceefax, so this is good for us. “We have a solid fan base, that’s for sure. Lots of people do like to see that the medium has come back.”
Mr Kwan admitted that although the news and information for Teefax comes “straight from the BBC”, he has never requested any licencing rights. Peter Kwan has created his own version of the teletext system Ceefax with all the same favourite pages as the origina Peter Kwan has created his own version of the teletext system Ceefax with all the same favourite pages as the original (Tom Wren / SWNS) “I think they [the BBC] probably know about what we’re doing, but we haven’t had a cease and desist”, he said.
“I think the BBC does allow their news to be used in this way, as long as we’re not making a profit from it, or trying to claim it as our own.” Despite all his work, Mr Kwan doesn’t actually know how many people use the service. “As for audience, I have no idea because the logging is turned off to stop wear and tear of the server,” he said.
“If it breaks I quickly get complaints, so I know that people are using it, but that’s all I know about the usage.”